ArticleResearch involvement and engagement2017
Recruiting patients as partners in health research: a qualitative descriptive study.
Article in Research involvement and engagement, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 32 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
32 citing papers in PubMed.
- 'It just wasn't going to be heard': A mixed methods study to compare different ways of involving people with diabetes and health-care professionals in health intervention research.Health expectations : an international journal of public participation in health care and health policy · 2020Trial
- Valuing student voices: a qualitative study on fair recognition and compensation practices for student partners in mental health research.Research involvement and engagement · 2026Article
- How to become partners. Ways to enhance the quality of patient and public involvement in healthcare research.Qualitative research in medicine & healthcare · 2025Article
- From Doubt to Diagnosis: Canadian Patient Perspectives on a Limb-Girdle Muscular Dystrophy Diagnosis.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- A multi-method evaluation of how equity deserving communities were engaged in research.BMC public health · 2025Article
- The People's Review protocol: planning an innovative study powered by the public.Research involvement and engagement · 2025Review
- American Medical Extended Reality Association Expert Consensus: Best Practices for Patient and Public Involvement in Medical Extended Reality Research.Journal of medical extended reality · 2025Article
- Conducting Patient-Oriented Research in Pediatric Populations: A Narrative Review.Children (Basel, Switzerland) · 2024Review
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- Involving parents of children treated for cancer in Sweden as public contributors to inform the design and conduct of an evaluation of internet-administered self-help for parents of children treated for cancer: a protocol.Research involvement and engagement · 2024Review
- Co-creating a person-centered creative engagement intervention for Parkinson's care.Frontiers in psychology · 2024Article
- Patient involvement in research within the Gynecological Cancer InterGroup: A call to action for a systematic approach: Results from a survey.Health science reports · 2023Article
- Engaging diverse patients in a diverse world: the development and preliminary evaluation of educational modules to support diversity in patient engagement research.Research involvement and engagement · 2023Article
- Implementing an Activity Tracker to Increase Motivation for Physical Activity in Patients With Diabetes in Primary Care: Strengths, Weaknesses, Opportunities and Threats (SWOT) Analysis.JMIR formative research · 2023Article
- Patient Engagement in Health Research: Perspectives from Patient Participants.Current oncology (Toronto, Ont.) · 2023Article
- Reciprocity in Low Back Pain Care and Its Role in Power Dynamics: A Give-and-Take Approach.Physical therapy · 2022Article
- Building Research Initiatives by Developing Group Effort (BRIDGE): Patient-Partners in Aphasia Research.Seminars in speech and language · 2022Article
- Stroke survivors partner in research: a case example of collaborative processes.Research involvement and engagement · 2022Article
- Patient-centered Outcomes Research in Interstitial Lung Disease: An Official American Thoracic Society Research Statement.American journal of respiratory and critical care medicine · 2021Article
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
plain english summaryIncreasingly, funders and researchers want to partner with patients in health research, but it can be challenging for researchers to find patient partners. More than taking part in research as participants, patient partners help design, carry out and manage research projects. The goal of this study was to describe ways that patient partners have been recruited by researchers and patient engagement leads (individuals within organizations responsible for promoting and supporting patients as research partners). We talked with researchers and patient engagement leads in Canada and the United Kingdom, as well as a patient representative. We found three ways that could help researchers and patients find each other. One way is a case-by-case basis, where patients are often sought with experience of a health condition that is the focus of the research. The other ways involved directories where projects were posted and could be found by patients and researchers, or a third party matched patients with research projects. We found four recruitment strategies:Social marketingCommunity outreachHealth systemPartnering with other organizations (e.g., advocacy groups) There are many influences on finding, selecting and retaining patient partners: patient characteristics, the local setting, the opportunity, work climate, education and support. We hope study results will provide a useful starting point for research teams in recruiting their patient partners. ABSTRACT:
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