ArticleResearch involvement and engagement2016
Keeping it credible in cohort multiple Randomised Controlled Trials: the Community Ageing Research 75+ (CARE 75+) study model of patient and public involvement and engagement.
Article in Research involvement and engagement, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
19 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Community based complex interventions to sustain independence in older people: systematic review and network meta-analysis.BMJ (Clinical research ed.) · 2024Pooled it
- Frameworks for supporting patient and public involvement in research: Systematic review and co-design pilot.Health expectations : an international journal of public participation in health care and health policy · 2019Pooled it
- Home-based extended rehabilitation for older people with frailty (HERO): a multicentre randomised controlled trial with health economic analysis and process evaluation.Health technology assessment (Winchester, England) · 2026Trial
- Patient and public perceptions of involvement and engagement in healthcare research: a descriptive exploratory qualitative study in Hong Kong.Research involvement and engagement · 2026Article
- Evolution of Patient and Public Involvement and Engagement in Health-Related Research: A Concept Analysis.Journal of advanced nursing · 2026Review
- Involvement of patient organisations in research activities: actions taken and lessons learned in a clinical research study for osteogenesis imperfecta.Orphanet journal of rare diseases · 2025Article
- Development and external validation of the electronic frailty index 2 using routine primary care electronic health record data.Age and ageing · 2025Article
- Development of the Community-based complex Interventions to sustain Independence in Older People (CII-OP) typology: a qualitative synthesis of interventions in randomised controlled trials.Age and ageing · 2024Article
- Randomised trials conducted using cohorts: a scoping review.BMJ open · 2024Article
- Evaluating the impact of engaging older adults and service providers as research partners in the co-design of a community mobility-promoting program: a mixed methods developmental evaluation study.Research involvement and engagement · 2023Article
- Article
- Involving frail older patients in identifying outcome measures for transitional care-a feasibility study.Research involvement and engagement · 2021Article
- Ethical considerations for engaging frail and seriously ill patients as partners in research: sub-analysis of a systematic review.Research involvement and engagement · 2021Review
- Partnering with frail or seriously ill patients in research: a systematic review.Research involvement and engagement · 2020Review
- Tygerberg Research Ubuntu-Inspired Community Engagement Model: Integrating Community Engagement into Genomic Biobanking.Biopreservation and biobanking · 2019Article
- A review and synthesis of frameworks for engagement in health research to identify concepts of knowledge user engagement.BMC medical research methodology · 2019Review
- Co-producing Progression Criteria for Feasibility Studies: A Partnership between Patient Contributors, Clinicians and Researchers.International journal of environmental research and public health · 2019Article
- Community ageing research 75+ study (CARE75+): an experimental ageing and frailty research cohort.BMJ open · 2019Article
- Methods for Involving Older People in Health Research-A Review of the Literature.International journal of environmental research and public health · 2017Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
plain english summaryThere are well documented benefits to involving patients and the public in research. However, there is little research published about their involvement in large complex studies such as cohort multiple Randomised Controlled Trials (cmRCTs). The cmRCT method establishes a group of participants, with a common characteristic (e.g. older people) who will be followed over a number of years. Other (sub) studies can also recruit from this pool of people. This method offers researchers many advantages, including being able to recruit from more hard to reach groups. However, cmRCTs also have features which can make it more complicated to involve patients and the public. For example more than one study may take place at the same time; studies may be spread out over a large geographical area and they may include a wide range of topics. In spite of these difficulties we have developed a way of working with patients, the public and researchers that provides stability over time but allows flexibility along the way. Our model of working has saved us time and money; helped us to recruit more widely, and enabled us to focus our research in areas that are important to older people with frailty. ABSTRACT:
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.