Evidence map›Paper›PMID 29062524›Full record

ArticleResearch involvement and engagement2016

Development of a decision guide to support the elderly in decision making about location of care: an iterative, user-centered design.

Mirjam M Garvelink, Julie Emond, Matthew Menear, Nathalie Brière, Adriana Freitas, Laura Boland, Maria Margarita Becerra Perez, Louisa Blair, Dawn Stacey, France Légaré

Registry-linked trialAbstract read
In one paragraph

Article in Research involvement and engagement, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04267484 (Technology to Support Decision Making About Aging at Home), which is not on this map. Cited by 26 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
26citing papers in PubMed, 3 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT04267484 unknown statusnot on this mapstarted 2018, after this paper: background citation

Technology to Support Decision Making About Aging at Home (COORDINATEs)

TypeobservationalSponsorCHU de Quebec-Universite LavalRan2018 to 2021Enrolled294ConditionsMemory Problems, Aging, Mild Cognitive Impairment, Shared Decision MakingArmsGPS and travel diary, e-decision support platform
3 · Its place in the literature

Who cites it

26 citing papers in PubMed, 3 syntheses or guidelines pooled it.

  1. Pooled it
  2. Extent and Predictors of Decision Regret among Informal Caregivers Making Decisions for a Loved One: A Systematic Review.Medical decision making : an international journal of the Society for Medical Decision Making · 2020
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Mirjam M GarvelinkCHU de Québec Research Centre - Hôpital St-Francois d'Assise, 10 Rue Espinay, Quebec City, QC G1L 3L5 Canada.
Julie EmondCentre de santé et de services sociaux de la Vieille-Capitale, 880, rue Père-Marquette, Quebec City, QC G1M 2R9 Canada.
Matthew MenearCHU de Québec Research Centre - Hôpital St-Francois d'Assise, 10 Rue Espinay, Quebec City, QC G1L 3L5 Canada.
Nathalie BrièreCentre de santé et de services sociaux de la Vieille-Capitale, 880, rue Père-Marquette, Quebec City, QC G1M 2R9 Canada.
Adriana FreitasCHU de Québec Research Centre - Hôpital St-Francois d'Assise, 10 Rue Espinay, Quebec City, QC G1L 3L5 Canada.
Laura BolandOttawa Hospital Research Institute, 725 Parkdale Ave., Ottawa, ON K1Y 4E9 Canada.
Maria Margarita Becerra PerezCHU de Québec Research Centre - Hôpital St-Francois d'Assise, 10 Rue Espinay, Quebec City, QC G1L 3L5 Canada.
Louisa BlairCHU de Québec Research Centre - Hôpital St-Francois d'Assise, 10 Rue Espinay, Quebec City, QC G1L 3L5 Canada.
Dawn StaceyUniversity of Ottawa, 451 Smyth Road, Ottawa, ON K1H 8M5 Canada.
France LégaréCHU de Québec Research Centre - Hôpital St-Francois d'Assise, 10 Rue Espinay, Quebec City, QC G1L 3L5 Canada.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

plain english summaryFor the elderly to get the care and services they need, they may need to make the difficult decision about staying in their home or moving to another home. Many other people may be involved in their care too (friends, family and healthcare providers), and can support them in making the decision. We asked informal caregivers of elderly people to help us develop a decision guide to support them and their loved ones in making this decision. This guide will be used by health providers in home care who are trained to help people make decisions. The guide is in French and English. To design and test this decision guide we involved elderly people, their caregivers and health administrators. We first asked them what they needed for making the decision, and then designed a first version of the guide. Then we asked them to look at it and give feedback, which was used to make the final version. We then used scientific criteria to check its content and the language used. The final decision guide was acceptable to the caregivers, their elderly loved ones, and the health administrators. The guide is currently being evaluated in a large research project with home care teams in the province of Quebec. ABSTRACT:

Indexed as

CaregiversDecision aidsElderlyEnd-user involvementLocation of careShared decision making

Identifiers

PMID29062524
PMCPMC5611600

What OpenQuestion holds

Textmetadata
LicenceCC BY
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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.