ReviewResearch involvement and engagement2016
Giving voice to older adults living with frailty and their family caregivers: engagement of older adults living with frailty in research, health care decision making, and in health policy.
Review in Research involvement and engagement, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 62 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
62 citing papers in PubMed, 1 synthesis or guideline pooled it, 134 citations in OpenAlex.
- Perspectives of older adults, caregivers, healthcare providers on frailty screening in primary care: a systematic review and qualitative meta-synthesis.BMC geriatrics · 2022Pooled it
- Trial
- Study protocol for a pilot randomized controlled trial of SONATA: A social network intervention for older adults with advanced cancer.Journal of geriatric oncology · 2026Article
- Co-design of a decision aid for the management of lentigo maligna in older and frailer adults.Skin health and disease · 2026Article
- Patient and public involvement in pragmatic trials with older adults: a multi-methods study of researchers' experiences.BMC geriatrics · 2026Article
- Article
- Fitting a square peg in a round hole? A mixed-methods study on research ethics and collaborative health and social care research involving 'vulnerable' groups.Health research policy and systems · 2025Article
- Factors Influencing General Practitioners' Deprescribing Decisions for Older Adults, with Insights into Frailty: a Qualitative Study in Greek Primary Care.Drugs & aging · 2025Article
- Association of Frailty Index at 66 Years of Age with Health Care Costs and Utilization Over 10 Years in Korea: Retrospective Cohort Study.JMIR public health and surveillance · 2025Article
- Resident- and family-led huddles for collaborative care planning in long-term care: a feasibility study.Innovation in aging · 2025Article
- Daily stress-influence dynamics predict relationship satisfaction in post-stroke couples.Frontiers in psychology · 2025Article
- Financial train, health behaviors, and psychological well-being of family caregivers of older adults during the COVID-19 pandemic.PEC innovation · 2024Article
- How Do We Get the Public Into Public Health Research? Learnings and Key Recommendations From Initiating a Community Involvement Project Scheme.Health expectations : an international journal of public participation in health care and health policy · 2024Review
- Motivations of family advisors in engaging in research to improve a palliative approach to care for persons living with dementia: an interpretive descriptive study.Research involvement and engagement · 2024Article
- Whom Do I Trust to Represent Me? Long-Term Care Resident and Family Perspectives on Legitimate Representation.Healthcare policy = Politiques de sante · 2024Article
- Public Engagement in Health Policy-Making for Older Adults: A Systematic Search and Scoping Review.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Strategies for engaging older adults and informal caregivers in health policy development: A scoping review.Health research policy and systems · 2024Article
- Why are older adults living with the complexity of multiple long-term conditions, frailty and a recent deterioration in health under-served by research? A narrative synthesis review of the literature.Journal of frailty, sarcopenia and falls · 2023Review
- The prevalence and predictors of geriatric giants in community-dwelling older adults: a cross-sectional study from the Middle East.Scientific reports · 2023Article
- Including the voice of older people in the co-design of perioperative pathways of care.Future healthcare journal · 2023Article
2 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
14 authors at 8 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
plain english summaryThe paper discusses engaging older adults living with frailty ABSTRACT: Older adults are the fastest growing segment of Canada's population resulting in an increased number of individuals living with frailty. Although aging and frailty are not synonymous the proportion of those who are frail increases with age. Frailty is not defined by a single condition, but rather a health state characterized by an increased risk of physical, mental, or social decline, deterioration of health status, and death. Recognizing frailty is important because earlier detection allows for program implementation focused on prevention and management to reduce future hospitalization, improve outcomes, and enhance vitality and quality of life. Even though older adults living with frailty are significant users of health care resources, their input is under-represented in research, health care decision making, and health policy formulation. As such, engaging older adults living with frailty and their family caregivers is not only an ethical imperative, but their input is particularly important as health and social care systems evolve from single-illness focused to those that account for the complex and chronic needs that accompany frailty. In this review, we summarize existing literature on engaging older adults living with frailty and their family caregivers across three settings: research, health and social care, and policy. We discuss strategies and barriers to engagement, and ethical and cultural factors and implications. Although this review is mainly focused on Canada it is likely to be broadly applicable to many of the health systems in the developed world where aging and frailty pose important challenges.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.