ArticleResearch involvement and engagement2016
A patient and public involvement (PPI) toolkit for meaningful and flexible involvement in clinical trials - a work in progress.
Article in Research involvement and engagement, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 3 registered trials, which are not on this map. Cited by 107 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Effects of Question Section Order on Prioritization of Items by Stakeholder Groups in an Online Delphi Study
Protocol Lab for Online Trials-Delphi (PLOT-D)
Effects of Population Compared to Purposive Sampling for Consensus in an Online Delphi Study
Who cites it
107 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Identifying Common Patient-Oriented Priorities for Child and Adolescent Health Research and Care: A Systematic Review of Priority Setting Partnerships.Health expectations : an international journal of public participation in health care and health policy · 2025Pooled it
- Frameworks for supporting patient and public involvement in research: Systematic review and co-design pilot.Health expectations : an international journal of public participation in health care and health policy · 2019Pooled it
- Patient and public involvement in health research in low and middle-income countries: a systematic review.BMJ open · 2019Pooled it
- A tailored psychological intervention for anxiety and depression management in people with chronic obstructive pulmonary disease: TANDEM RCT and process evaluation.Health technology assessment (Winchester, England) · 2024Trial
- A report on parent involvement in planning a randomised controlled trial in neonatology and lactation - insights for current and future research.International breastfeeding journal · 2022Trial
- A multidomain decision support tool to prevent falls in older people: the FinCH cluster RCT.Health technology assessment (Winchester, England) · 2022Trial
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- The Guidelines International Network Public Toolkit: Supporting Guideline Developers to Implement Best-Practice for Patient and Public Involvement.Clinical and public health guidelines · 2026Article
- Why involvement remains fragile: a qualitative comparison of principal investigators' and patient organisations' perspectives in Italy.Research involvement and engagement · 2026Article
- The Impact of Patient and Professional Users' Involvement in Implementation for Virtual Reality in Hospitalised Palliative Cancer Patients in a German Cancer Centre-A Qualitative Analysis.Healthcare (Basel, Switzerland) · 2026Article
- Patient and public involvement and engagement in Long COVID research: embedding inclusion in research.Research involvement and engagement · 2026Article
- Scoping Review of Co-Design in Mental Health Research: Essential Elements and Recommendations.OTJR : occupation, participation and health · 2026Article
- Article
- Evaluation of the Acceptability and Feasibility of Stress Mitigation Education and Support Delivered via Telehealth for People After Road Traffic Musculoskeletal/Orthopedic Injury.Journal of occupational rehabilitation · 2026Article
- Beyond the dataset: integrating public voices in data science.Research involvement and engagement · 2026Article
- Patient and public involvement and engagement in methodology research: process, experiences, and recommendations from the SPIRIT- and CONSORT-Surrogate project.Research involvement and engagement · 2025Article
- Progressing participatory research with young people in India: how a youth advisory board supported a large mental health project in Bengaluru.Research involvement and engagement · 2025Article
- Enhancing Self-Care Confidence Among Colorectal Cancer Patients: Insights From Postoperative Experiences.Cureus · 2025Article
47 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors.
Funding
Abstract
plain language summaryFunders of research are increasingly requiring researchers to involve patients and the public in their research. Patient and public involvement (PPI) in research can potentially help researchers make sure that the design of their research is relevant, that it is participant friendly and ethically sound. Using and sharing PPI resources can benefit those involved in undertaking PPI, but existing PPI resources are not used consistently and this can lead to duplication of effort. This paper describes how we are developing a toolkit to support clinical trials teams in a clinical trials unit. The toolkit will provide a key 'off the shelf' resource to support trial teams with limited resources, in undertaking PPI. Key activities in further developing and maintaining the toolkit are to: ● listen to the views and experience of both research teams and patient and public contributors who use the tools; ● modify the tools based on our experience of using them; ● identify the need for future tools; ● update the toolkit based on any newly identified resources that come to light; ● raise awareness of the toolkit and ● work in collaboration with others to either develop or test out PPI resources in order to reduce duplication of work in PPI. ABSTRACT:
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.