ArticleResearch involvement and engagement2015
Researching health inequalities with Community Researchers: practical, methodological and ethical challenges of an 'inclusive' research approach.
Article in Research involvement and engagement, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
19 citing papers in PubMed.
- Patient and Public Involvement in Research Evaluating Integrated Care for People Experiencing Homelessness: Findings From the PHOENIx Community Pharmacy Pilot Randomised-Controlled Trial.Health expectations : an international journal of public participation in health care and health policy · 2024Trial
- Belonging for Women, LGBTQ+ and Black and Ethnically Minoritised People With Learning Disabilities: Findings From a Qualitative, Co-Produced Study in England.Sociology of health & illness · 2026Article
- A community-based qualitative study of perspectives on alcohol public health interventions and experiences of alcohol use.BMC public health · 2026Article
- A novel framework for operationalising patient and public involvement: lessons from designing an AI-informed exercise prescription grant.Research involvement and engagement · 2025Article
- Do I belong here? The lived experience of navigating health services as a Black person living with stroke in England.BMC health services research · 2025Article
- Designing a Flexible and Inclusive Approach for Public and Community Involvement in Research With People Who Are Homeless or Vulnerably Housed: Critical Reflections From the I Am More Than… Project.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Methodological reflections on identifying and reaching groups left behind from health programs for fieldwork in Kerala, India.Discover public health · 2025Article
- UK primary care research: we need more researchers of Black heritage.The British journal of general practice : the journal of the Royal College of General Practitioners · 2024Article
- Building an understanding of Ethnic minority people's Service Use Relating to Emergency care for injuries: the BE SURE study protocol.BMJ open · 2023Article
- Health research in the Syrian conflict: opportunities for equitable and multidisciplinary collaboration.Journal of public health (Oxford, England) · 2022Article
- A structured collaborative approach to intervention design using a modified intervention mapping approach: a case study using the Management and Interventions for Asthma (MIA) project for South Asian children.BMC medical research methodology · 2020Article
- Social Relations, Community Engagement and Potentials: A Qualitative Study Exploring Resident Engagement in a Community-Based Health Promotion Intervention in a Deprived Social Housing Area.International journal of environmental research and public health · 2020Article
- The impact and importance of place on health for young people of Pasifika descent in Queensland, Australia: a qualitative study towards developing meaningful health equity indicators.International journal for equity in health · 2019Article
- Co-Designing an Intervention to Increase HIV Testing Uptake with Women from Indonesia At-Risk of HIV: Protocol for a Participatory Action Research Study.Methods and protocols · 2019Article
- Turning the Co-Production Corner: Methodological Reflections from an Action Research Project to Promote LGBT Inclusion in Care Homes for Older People.International journal of environmental research and public health · 2018Article
- Diversifying audiences and producers of public involvement in scientific research: the AudioLab.Research involvement and engagement · 2018Article
- Community-based participatory research and integrated knowledge translation: advancing the co-creation of knowledge.Implementation science : IS · 2017Article
- An account from the inside: Examining the emotional impact of qualitative research through the lens of "insider" research.Qualitative psychology (Washington, D.C.) · 2017Article
- Patient and public involvement in patient safety research: a workshop to review patient information, minimise psychological risk and inform research.Research involvement and engagement · 2016Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
plain english summaryPublic health research sometimes uses members of communities as researchers. These are called Community Researchers. The advantage of using Community Researchers is that it enables people who live in communities to participate in research by designing the research, gathering data and being involved in analysis. This 'participatory' approach also has the potential to reach communities that might otherwise not be included in research. There are few studies that report the experiences of Community Researchers who take part in such research. This study helps fill this gap by exploring the issues and challenges faced by Community Researchers involved in a study of health and poverty in ethnically mixed areas of east London, UK. Through the accounts of 12 researchers, the study reveals that being a community 'insider' had advantages: many felt they had been able to gain the trust of respondents and access people for the research that would have otherwise been missed. The role of Community Researcher was, however, difficult to manage with some researchers feeling burdened by their role and the increased knowledge they had about the lives of those in their community. In addition to the personal challenges for the Community Researchers, the findings raise various ethical and methodological issues that need consideration in participatory research. ABSTRACT:
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.