ArticleProgress in community health partnerships : research, education, and action2017
Facilitating Meaningful Engagement on Community Advisory Committees in Patient-Centered Outcome Research.
Article in Progress in community health partnerships : research, education, and action, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers.
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Who cites it
18 citing papers in PubMed.
- Evaluating the Process of Patient Engagement: Insights from a Mixed-Methods Evaluation of a Cancer Center Patient Advisory Group.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Co-creating systems change for mental health: a theory of change approach from the MeHPriC initiative in Lagos, Nigeria.Implementation science communications · 2025Article
- Design and Implementation of a Community-Based Educational Program to Enhance Prostate Cancer Screening in Southeastern Puerto Rico.Healthcare (Basel, Switzerland) · 2025Article
- Engaging people with lived experience on community advisory boards in community-based participatory research: a scoping review.International journal for equity in health · 2025Article
- A systematic review of developments in mHealth smartphone applications for Transgender and Gender Diverse individuals.NPJ digital medicine · 2025Article
- Strategies for Presenting Research to Community Advisory Boards: Practical Tips from an HIV-focused CAB.Progress in community health partnerships : research, education, and action · 2025Article
- Development and evaluation of an anti-ageism advisory group with older adults and gerontological experts: a qualitative descriptive study.Research involvement and engagement · 2024Article
- Navigating process evaluation in co-creation: a Health CASCADE scoping review of used frameworks and assessed components.BMJ global health · 2024Article
- Experiences and lessons learned from a patient-engagement service established by a national research consortium in the U.S. Veterans Health Administration.Learning health systems · 2024Article
- From Incidence to Intervention: A Comprehensive Look at Breast Cancer in South Africa.Oncology and therapy · 2024Article
- What's in This For You? What's in This For Me?: A Win-Win Perspective of Involving Study Advisory Committee Members in Palliative Care Research.Journal of patient experience · 2024Article
- Evaluating the impact of engaging older adults and service providers as research partners in the co-design of a community mobility-promoting program: a mixed methods developmental evaluation study.Research involvement and engagement · 2023Article
- Community Engagement in Research and Design of a Transgender Health Information Resource.Applied clinical informatics · 2023Article
- Stakeholder engagement infrastructure to support multicenter research networks: Advances from the clinical research networks participating in PCORnet.Learning health systems · 2023Article
- Different in so many ways: Exploring consumer, health service staff, and academic partnerships in a research advisory group through rapid ethnography.Australian occupational therapy journal · 2022Article
- Community Engagement in Cutaneous Leishmaniasis Research in Brazil, Ethiopia, and Sri Lanka: A Decolonial Approach for Global Health.Frontiers in public health · 2022Article
- Researchers, patients, and other stakeholders' perspectives on challenges to and strategies for engagement.Research involvement and engagement · 2020Article
- Exploring Ethical Issues Related to Patient Engagement in Healthcare: Patient, Clinician and Researcher's Perspectives.Journal of bioethical inquiry · 2019Article
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
backgroundReflecting on the processes and practices used to engage community stakeholders in patient-centered outcome research strengthens participation at the project level and contributes more broadly to developing knowledge about effective participatory processes and methods.
objectivesWe conducted a process evaluation of ongoing activities of a Patient Advisory Committee (PAC) formed around the development of an individualized decision aid for older women with early stage breast cancer.
methodsIn-depth qualitative interviews were conducted with PAC members to obtain their input on the effectiveness of the project's participatory approach and identify barriers to participation. Results and Lessons Learned: Although there was general support for the aims of the study, patient knowledge gaps and meeting facilitation style limited participation. Members made suggestions on improving collaboration within the group that, when implemented, resulted in increased participation and revitalized interest in the project.
conclusionsResults suggest that engaging committee members in a process of evaluation and collective reflection during a research collaboration can break down barriers to collaboration, build relationships, create opportunities for co-learning and strengthen researchers' capacity to engage meaningfully with stakeholders.
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