ArticleHealth care analysis : HCA : journal of health philosophy and policy2018
Showing the Unsayable: Participatory Visual Approaches and the Constitution of 'Patient Experience' in Healthcare Quality Improvement.
Article in Health care analysis : HCA : journal of health philosophy and policy, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 1 of them a synthesis that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
16 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Consumers' and health providers' views and perceptions of partnering to improve health services design, delivery and evaluation: a co-produced qualitative evidence synthesis.The Cochrane database of systematic reviews · 2023Pooled it
- Using Photovoice to Improve Engagement in Community Health Assessments Addressing Behavioral Health.The journal of behavioral health services & research · 2025Article
- Article
- "I don't know if I understood the whole process from the beginning": A photo-elicitation exploration of the experience of mastectomy and breast reconstruction decision making.PEC innovation · 2023Article
- Cancer survival stories: Perception, creation, and potential use case.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- On photovoice-Applications and reflections to an intensive care context.Scandinavian journal of caring sciences · 2022Article
- Co-designing a behavioural intervention for reducing the impact of chemotherapy-induced peripheral neuropathy symptoms: An evidence- and theory-driven approach.European journal of cancer care · 2022Observational
- Through the eyes of hospital-based healthcare professionals: exploring their lived experience during the COVID-19 pandemic.BMJ open quality · 2022Article
- Developing catalyst films of health experiences: an analysis of a robust multi-stakeholder involvement journey.Research involvement and engagement · 2022Article
- What about Using Photovoice for Health and Safety?International journal of environmental research and public health · 2021Article
- More than a method: trusting relationships, productive tensions, and two-way learning as mechanisms of authentic co-production.Research involvement and engagement · 2021Article
- 'It's common sense that an individual must eat': Advocating for food justice with people with psychiatric disabilities through photovoice.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- Developing a patient safety guide for primary care: A co-design approach involving patients, carers and clinicians.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- Article
- Enhancing the healthcare quality improvement storyboard using photovoice.BMJ open quality · 2020Article
- Lost in the shadows: reflections on the dark side of co-production.Health research policy and systems · 2020Article
Corrections and comments
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Authors and funding
1 author.
Funding
Abstract
This article considers the strengths and potential contributions of participatory visual methods for healthcare quality improvement research. It argues that such approaches may enable us to expand our understanding of 'patient experience' and of its potential for generating new knowledge for health systems. In particular, they may open up dimensions of people's engagement with services and treatments which exceed both the declarative nature of responses to questionnaires and the narrative sequencing of self reports gathered through qualitative interviewing. I will suggest that working with such methods may necessitate a more reflexive approach to the constitution of evidence in quality improvement work. To this end, the article will first consider the emerging rationale for the use of visual participatory methods in improvement before outlining the implications of two related approaches-photo-elicitation and PhotoVoice-for the constitution of 'experience'. It will then move to a participatory model for healthcare improvement work, Experience Based Co-Design (EBCD). It will argue that EBCD exemplifies both the strengths and the limitations of adequating visual participatory approaches to quality improvement ends. The article will conclude with a critical reflection on a small photographic study, in which the author participated, and which sought to harness service user perspectives for the design of psychiatric facilities, as a way of considering the potential contribution of visual participatory methods for quality improvement.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.