Evidence map›Paper›PMID 29034438›Full record

ArticleJournal of cancer survivorship : research and practice2018

The Pathways fertility preservation decision aid website for women with cancer: development and field testing.

Terri L Woodard, Aubri S Hoffman, Laura A Covarrubias, Deborah Holman, Leslie Schover, Andrea Bradford, Derek B Hoffman, Aakrati Mathur, Jerah Thomas, Robert J Volk

Abstract read
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In one paragraph

Article in Journal of cancer survivorship : research and practice, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 29 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
29citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

29 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Pilot trial of iBDecide: Evaluating an online tool to facilitate shared decision making for adolescents and young adults with ulcerative colitis.Health expectations : an international journal of public participation in health care and health policy · 2022
    Trial
  3. BMJ open · 2018
    Trial
  4. Article
  5. Initial development and usability testing of a digital fertility preservation navigator for newly diagnosed young adult cancer survivors.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
    Article
  6. Article
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  8. Article
  9. Article
  10. Exploring the experiences and priorities of women with a diagnosis of ovarian cancer.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023
    Article
  11. Assessing gaps in motherhood after cancer: development and psychometric testing of the Survivorship Oncofertility Barriers Scale.International journal of gynecological cancer : official journal of the International Gynecological Cancer Society · 2023
    Article
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  14. Review
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Terri L WoodardDepartment of Gynecologic Oncology and Reproductive Medicine, The University of Texas MD Anderson Cancer Center, 1155 Pressler Street, Unit 1362, Houston, TX, 77030, USA. tlwoodard@mdanderson.org.
Aubri S HoffmanDepartment of Health Services Research, The University of Texas MD Anderson Cancer Center, 1400 Pressler Street, Unit 1444, Houston, TX, 77030, USA.
Laura A CovarrubiasDepartment of Health Services Research, The University of Texas MD Anderson Cancer Center, 1400 Pressler Street, Unit 1444, Houston, TX, 77030, USA.
Deborah HolmanDepartment of Gynecologic Oncology and Reproductive Medicine, The University of Texas MD Anderson Cancer Center, 1155 Pressler Street, Unit 1362, Houston, TX, 77030, USA.
Leslie SchoverDepartment of Behavioral Science, The University of Texas MD Anderson Cancer Center, Will2Love, LLC, 1333 Old Spanish Trail, Suite G, #134, Houston, TX, 77054, USA.
Andrea BradfordDepartment of Medicine, Section of Gastroenterology and Hepatology, Baylor College of Medicine, 1 Baylor Plaza, Houston, TX, 77030, USA.
Derek B Hoffman, Veracity by Design, LLC, 12400 Shadow Creek Parkway #606, Pearland, TX, 77584, USA.
Aakrati MathurDepartment of Analytics, The University of Texas at Arlington, Box 19027, 416 Yates Street, Nedderman Hall, Suite 307, Arlington, TX, 76019, USA.
Jerah ThomasPatient Education, The University of Texas MD Anderson Cancer Center, 1155 Pressler Street, Unit 1288, Houston, TX, 77030, USA.
Robert J VolkDepartment of Health Services Research, The University of Texas MD Anderson Cancer Center, 1400 Pressler Street, Unit 1444, Houston, TX, 77030, USA.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeTo improve survivors' awareness and knowledge of fertility preservation counseling and treatment options, this study engaged survivors and providers to design, develop, and field-test Pathways: a fertility preservation patient decision aid website for young women with cancer©.

methodsUsing an adapted user-centered design process, our stakeholder advisory group and research team designed and optimized the Pathways patient decision aid website through four iterative cycles of review and revision with clinicians (n = 21) and survivors (n = 14). Field-testing (n = 20 survivors) assessed post-decision aid scores on the Fertility Preservation Knowledge Scale, feasibility of assessing women's decision-making values while using the website, and website usability/acceptability ratings.

resultsIterative stakeholder engagement optimized the Pathways decision aid website to meet survivors' and providers' needs, including providing patient-friendly information and novel features such as interactive value clarification exercises, testimonials that model shared decision making, financial/referral resources, and a printable personal summary. Survivors scored an average of 8.2 out of 13 (SD 1.6) on the Fertility Preservation Knowledge Scale. They rated genetic screening and having a biological child as strong factors in their decision-making, and 71% indicated a preference for egg freezing. Most women (> 85%) rated Pathways favorably, and all women (100%) said they would recommend it to other women.

conclusionsThe Pathways decision aid is a usable and acceptable tool to help women learn about fertility preservation. IMPLICATIONS FOR CANCER SURVIVORS: The Pathways decision aid may help women make well-informed values-based decisions and prevent future infertility-related distress.

Indexed as

AdolescentAdultDecision MakingDecision Support TechniquesFemaleFertility PreservationHumansInfertilityInternetMiddle AgedNeoplasmsSurvivorsYoung AdultCancerDecision makingDecision support techniquesFertility preservation

Identifiers

PMID29034438

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.