Evidence map›Paper›PMID 29029616›Full record

Trial reportPediatric rheumatology online journal2017

Short term effectiveness and experiences of a peer guided web-based self-management intervention for young adults with juvenile idiopathic arthritis.

Judy Ammerlaan, Harmieke van Os-Medendorp, Nienke de Boer-Nijhof, Lieske Scholtus, Aike A Kruize, Philomine van Pelt, Berent Prakken, Hans Bijlsma

Open access · goldAbstract readRandomized Controlled Trial
In one paragraph

Trial report in Pediatric rheumatology online journal, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 5 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
15citing papers in PubMed, 5 pooled it
7.6field-weighted citation impact, top 3% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

15 citing papers in PubMed, 5 syntheses or guidelines pooled it, 31 citations in OpenAlex.

  1. Guideline
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  6. Trial
  7. Review
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  9. Future challenges in rheumatology - is telemedicine the solution?Therapeutic advances in musculoskeletal disease · 2022
    Review
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 2 institutions in 1 country.

Judy AmmerlaanDepartment Rheumatology & Clinical Immunology HPN D02.244, University Medical Center Utrecht, PO Box 85090, 3508 GA, Utrecht, the Netherlands. j.ammerlaan@umcutrecht.nl.ORCID http://orcid.org/0000-0002-8481-097X
Harmieke van Os-MedendorpDepartment Dermatology and Allergology HPN D02.244, University Medical Center Utrecht, PO Box 85090, 3508 GA, Utrecht, the Netherlands.
Nienke de Boer-NijhofDepartment Rheumatology & Clinical Immunology HPN D02.244, University Medical Center Utrecht, PO Box 85090, 3508 GA, Utrecht, the Netherlands.
Lieske ScholtusDepartment Rheumatology & Clinical Immunology HPN D02.244, University Medical Center Utrecht, PO Box 85090, 3508 GA, Utrecht, the Netherlands.
Aike A KruizeDepartment of Rheumatology & Clinical Immunology HPN F02.127, University Medical Center Utrecht, PO Box 85090, 3508 GA, Utrecht, the Netherlands.
Philomine van PeltDepartment of Pediatric Immunology, Erasmus MC, Department of Rheumatology, University Medical Center Utrecht, PO Box 2040, Room Nb 852, 3000 GA, Rotterdam, Netherlands.
Berent PrakkenDepartment of Pediatric Immunology, University Medical Center Utrecht, PO Box 85090, 3508 AB, Utrecht, Netherlands.
Hans BijlsmaDepartment of Rheumatology & Clinical Immunology HPN F02.127, University Medical Center Utrecht, PO Box 85090, 3508 GA, Utrecht, the Netherlands.
University Medical Center Utrecht · NLErasmus MC · NL

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundA web-based self-management intervention guided by peer-trainers was developed to support young adults' self-management in coping with Juvenile Idiopathic Arthritis (JIA). To investigate its effectiveness, a randomized controlled trial (RCT) was conducted. In addition, the content of the chat and participants' goals were studied to identify underlying processes.

methodsAn RCT with a six-month follow up period was conducted among 72 young adults with JIA, aged between 16 and 25 years old, randomly assigned to the intervention or to the usual care control group. After 24 weeks, in both groups 24 participants completed all measurements. Intentions to treat analyses were carried out by means of linear mixed models for longitudinal measurements. With self-efficacy as primary outcome, self-management, disease activity, quality of life, absenteeism of school/work, health care medication use and adherence to the intervention were studied. The participants' goals, personal achievements, interactions on the chat, and their appreciation of the intervention were analyzed using thematic analyses.

resultsNo significant differences were found on self-efficacy, quality of life, and self-management between the participants of the control group and the intervention group. In the intervention group, modeling and sharing experiences were the most recognized themes. Fifty-five goals were formulated and divided into the following categories: improvement and maintaining balance, setting and recognizing boundaries, communicating and coping with incomprehension. Adherence, appreciation of the own learning experience, and personal achievements were rated positively.

conclusionThe web-based intervention did not lead to an improvement of self-efficacy. However, additional qualitative analyses showed that the intervention was appreciated and valuable for the participants. More research is needed on how to measure the added value of this intervention compared to the usual care.

trial registrationTrial registration number NTR4679 .

Indexed as

AdolescentAdultArthritis, JuvenileFemaleHumansInternetMalePeer GroupQuality of LifeSelf EfficacySelf-ManagementTreatment OutcomeYoung AdultEffectivenessExperiencesJuvenile idiopathic arthritisPeer-guidedSelf-managementShort-termWeb-based interventionYoung adults

Identifiers

PMID29029616
PMCPMC5640921
OpenAlexW2764025250

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.