ArticleInternational journal of women's health2017
Factors associated with continuing emergence of β-thalassemia major despite prenatal testing: a cross-sectional survey.
Article in International journal of women's health, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.
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Who cites it
4 citing papers in PubMed, 9 citations in OpenAlex.
- High awareness, moderate knowledge, and prevention-oriented practices regarding β-thalassemia among young adults in Palestine: a cross-sectional study.BMC public health · 2026Article
- Thalassemia screening: Low level of knowledge among unmarried youths in Kota Bharu, Kelantan, Malaysia.Malaysian family physician : the official journal of the Academy of Family Physicians of Malaysia · 2022Article
- Health Status of Patients With β-Thalassemia in the West Bank: A Retrospective-Cohort Study.Frontiers in medicine · 2021Article
- Social and cultural influences on genetic screening programme acceptability: A mixed-methods study of the views of adults, carriers, and family members living with thalassemia in the UK.Journal of genetic counseling · 2020Article
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Authors and funding
6 authors at 2 institutions in 2 countries.
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Abstract
purposeHealth care initiatives focusing on prenatal testing and premarital genetic screening aiming to reduce the incidence of β-thalassemia have emerged during the last decade. In Palestine, 4% of the population are known thalassemia carriers with new cases continuing to appear despite the availability of prenatal testing. This study aims to identify factors that influence the decision to retain or abort fetuses affected by β-thalassemia in Palestine.
methodsConvenience sampling was used to select 32 women (72 fetuses) who were at risk of having a baby with β-thalassemia. A questionnaire on prenatal testing, test results, pregnancy outcomes, and factors influencing the decision to terminate the pregnancy were used for this cross-sectional study. The data were analyzed using SPSS version 17.
resultsAmong the fetuses screened, 36 (50%) were thalassemia carriers and 20 (28%) had β-thalassemia; 17 (85%) affected fetuses were aborted. Religious beliefs were the most cited reason for opposing abortion while prior experience with β-thalassemia patients and awareness programs promoted abortions. Mothers who opted to retain an affected fetus had modest educational attainment. Higher educational level was significantly associated with the decision to abort an affected fetus (
conclusionA religious consensus is needed on the abortion of fetuses affected by β-thalassemia. Improving female education and increasing awareness on thalassemia could help reduce the incidence of β-thalassemia in Palestine and around the world.
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