ArticleJournal of the American Medical Informatics Association : JAMIA2018
An environmental scan of shared access to patient portals.
Article in Journal of the American Medical Informatics Association : JAMIA, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
26 citing papers in PubMed.
- Sharing in care: engaging care partners in the care and communication of breast cancer patients.Breast cancer research and treatment · 2019Trial
- The administrative burden of medication affordability resources: an environmental scan with implications for health informatics to advance health equity.Journal of the American Medical Informatics Association : JAMIA · 2025Article
- A Multisite Demonstration of Shared Access to Older Adults' Patient Portals.JAMA network open · 2025Article
- Patient and family contributions to improve the diagnostic process through the OurDX electronic health record tool: a mixed method analysis.BMJ quality & safety · 2024Article
- Shared Access to Adults' Patient Portals: A Secret Shopper Exercise.Applied clinical informatics · 2024Article
- Patient Portals Fail to Collect Structured Information About Who Else is Involved in a Person's Care.Journal of medical Internet research · 2024Article
- The State-of-the-Art of Patient Portals: Adapting to External Factors, Addressing Barriers, and Innovating.Applied clinical informatics · 2023Review
- Use of provider-sponsored patient portals among older adults and their family caregivers.Journal of the American Geriatrics Society · 2023Article
- The Role of Dementia and Residential Service Agency Characteristics in the Care Experiences of Maryland Medicaid Home and Community-Based Service Participants and Family and Unpaid Caregivers.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2023Article
- Improving Cancer Care Communication: Identifying Sociodemographic Differences in Patient Portal Secure Messages Not Authored by the Patient.Applied clinical informatics · 2023Article
- Contextual Factors That Impact the Implementation of Patient Portals With a Focus on Older People in Acute Care Hospitals: Scoping Review.JMIR aging · 2023Article
- Patient Portals to Support Care Partner Engagement in Adolescent and Adult Populations: A Scoping Review.JAMA network open · 2022Article
- Progress Toward Digital Transformation in an Evolving Post-Acute Landscape.Innovation in aging · 2022Article
- Article
- Patient portals for the adolescent and young adult population: Benefits, risks and guidance for use.Current problems in pediatric and adolescent health care · 2021Article
- Article
- Assessment of Prevalence of Adolescent Patient Portal Account Access by Guardians.JAMA network open · 2021Article
- Should We Keep Spackling the Cracks Across the Health Care Continuum or Build a New Path Forward With Safer Transitions of Care?Medical care · 2021Article
- Development and Validation of a Useful Taxonomy of Patient Portals Based on Characteristics of Patient Engagement.Methods of information in medicine · 2021Article
- A randomized intervention involving family to improve communication in breast cancer care.NPJ breast cancer · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
We sought to understand the comprehensiveness of consumer-oriented information describing the availability of shared access to adult patient portals from publicly reported information on institutional websites of 20 large and geographically diverse health systems. All 20 health systems reported that they offer patients the ability to share access to their patient portal account with a family member or friend; however, the comprehensiveness of information regarding registration procedures, features, and terminology varied widely. Half of the systems (n = 10) reported having shared access available on their patient portal registration webpage. Few systems (n = 2) reported affording patients the ability to differentiate specific role-based privileges. No systems reported uptake of shared access among adult patients, which was variably described as "proxy," "caregiver," "parental," or "delegate" access. Findings suggest that engaging families through health information technology will require greater efforts to promote awareness and differentiate privileges that respect patients' choice and control in information-sharing preferences.
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.