Evidence map›Paper›PMID 29022205›Full record

ArticleJournal of genetic counseling2018

Development of FOCUS-GC: Framework for Outcomes of Clinical Communication Services in Genetic Counseling.

Deborah Cragun, Heather Zierhut

Abstract read
In one paragraph

Article in Journal of genetic counseling, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers.

0numbers the graph read from it
0cells of the map it votes in
24citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

24 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

2 authors.

Deborah CragunDepartment of Global Health, University of South Florida, 3720 Spectrum Boulevard, IDRB 304, Tampa, FL, 33612, USA. dcragun@health.usf.edu.
Heather ZierhutDepartment of Genetics, Cell Biology, and Development, University of Minnesota, Twin Cities, Minneapolis, MN, USA.

Funding

Moffitt Postdoctoral Training Program in Molecular & Genetic EpidemiologyR25CA147832 · NCI · H. LEE MOFFITT CANCER CTR & RES INST · PI EGAN, KATHLEEN M. · 2010 to 2014
$2.0M
Mentored Training for Dissemination and Implemention Research in CancerR25CA171994 · NCI · WASHINGTON UNIVERSITY · PI BROWNSON, ROSS C · 2013 to 2017
$1.5M
NCI NIH HHS R25 CA147832NCI NIH HHS R25 CA171994
6 · The paper itself

Abstract

Conceptual frameworks bring together existing theories and models in order to identify, consolidate, and fill in gaps between theory, practice, and evidence. Given the vast number of possible outcomes that could be studied in genetic counseling, a framework for organizing outcomes and postulating relationships between communication services and genetic counseling outcomes was sought. Through an iterative approach involving literature review, thematic analysis, and consolidation, outcomes and processes were categorized to create and define components of a conceptual framework. The final product, "Framework for Outcomes of Clinical commUnication Services" (FOCUS) contains the following domains: communication strategy; communication process measures; patient care experience, patient changes, patient health; and family changes. A website was created to allow easier access and ongoing modifications to the framework. In addition, a step-by-step guide and two examples were created to show flexibility in how the framework can be used. FOCUS may help in conceptualizing, organizing and summarizing outcomes research related to risk communication and counseling in genetic service delivery as well as other healthcare settings.

Indexed as

Program DevelopmentCommunicationGenetic CounselingGenetic TestingHumansOutcome Assessment, Health CareReview Literature as TopicCascade testingEvaluationFamily communicationGenetic counselingGenetic servicesPatient communicationPatient outcomes

Identifiers

PMID29022205
PMCPMC5796847

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.