ArticleJMIR public health and surveillance2017
Participatory Disease Surveillance: Engaging Communities Directly in Reporting, Monitoring, and Responding to Health Threats.
Article in JMIR public health and surveillance, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 53 papers, 1 of them a synthesis that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
53 citing papers in PubMed, 1 synthesis or guideline pooled it.
- The Landscape of Participatory Surveillance Systems Across the One Health Spectrum: Systematic Review.JMIR public health and surveillance · 2022Pooled it
- AI Agents and Epidemic Intelligence on Respiratory Infectious Diseases: Toward a Conceptual Framework Integrating Decision Support.Journal of medical Internet research · 2026Article
- Enrollment in participatory surveillance programs and influenza vaccination uptake: A systematic review protocol.PloS one · 2026Article
- Collaborative Surveillance: Using a Minimum Set of Key Data Parameters for One Health Participatory Surveillance.JMIR public health and surveillance · 2025Article
- Data Parameters From Participatory Surveillance Systems in Human, Animal, and Environmental Health From Around the Globe: Descriptive Analysis.JMIR public health and surveillance · 2025Article
- A cross-sectional study of COVID-19 testing and disclosure hesitancy: The role of responsibility attribution in South Korea.PloS one · 2025Article
- Cassava mosaic disease in Burkina Faso: epidemiological aspects and disease management perspectives.Discover agriculture · 2025Article
- Influenza-Like Illness in Lesotho From July 2020 to July 2021: Population-Based Participatory Surveillance Results.JMIR public health and surveillance · 2024Article
- An Ontology to Bridge the Clinical Management of Patients and Public Health Responses for Strengthening Infectious Disease Surveillance: Design Science Study.JMIR formative research · 2024Article
- Collective Intelligence-Based Participatory COVID-19 Surveillance in Accra, Ghana: Pilot Mixed Methods Study.JMIR infodemiology · 2024Article
- Participatory Disease Surveillance for the Early Detection of Cholera-Like Diarrheal Disease Outbreaks in Rural Villages in Malawi: Prospective Cohort Study.JMIR public health and surveillance · 2024Article
- Moana: Alternate surveillance for COVID-19 in a Unique Population (MASC-UP).Contemporary clinical trials communications · 2024Article
- Evaluation of a multi-component early warning system for pastoralist populations in Doolo zone, Ethiopia: mixed-methods study.Conflict and health · 2024Article
- Active Participatory Regional Surveillance for Notifiable Swine Pathogens.Animals : an open access journal from MDPI · 2024Article
- Unconventional data, unprecedented insights: leveraging non-traditional data during a pandemic.Frontiers in public health · 2024Article
- Comparison of Influenza-Like Illness (ILI) incidence data from the novel LeCellPHIA participatory surveillance system with COVID-19 case count data, Lesotho, July 2020 - July 2021.BMC infectious diseases · 2023Article
- Engaging a national-scale cohort of smart thermometer users in participatory surveillance.NPJ digital medicine · 2023Article
- Lessons from COVID-19 for rescalable data collection.The Lancet. Infectious diseases · 2023Review
- Enabling Multicentric Participatory Disease Surveillance for Global Health Enhancement: Viewpoint on Global Flu View.JMIR public health and surveillance · 2023Article
- Smart Thermometer-Based Participatory Surveillance to Discern the Role of Children in Household Viral Transmission During the COVID-19 Pandemic.JAMA network open · 2023Article
Corrections and comments
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundSince 2012, the International Workshop on Participatory Surveillance (IWOPS) has served as an informal network to share best practices, consult on analytic methods, and catalyze innovation to advance the burgeoning method of direct engagement of populations in voluntary monitoring of disease.
objectiveThis landscape provides an overview of participatory disease surveillance systems in the IWOPS network and orients readers to this growing field of practice.
methodsAuthors reviewed participatory approaches that include human and animal health surveillance, both syndromic (self- reported symptoms) and event-based, and how these tools have been leveraged for disease modeling and forecasting. The authors also discuss benefits, challenges, and future directions for participatory disease surveillance.
resultsThere are at least 23 distinct participatory surveillance tools or programs represented in the IWOPS network across 18 countries. Organizations supporting these tools are diverse in nature.
conclusionsParticipatory disease surveillance is a promising method to complement both traditional, facility-based surveillance and newer digital epidemiology systems.
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