Evidence map›Paper›PMID 29018568›Full record

ArticleRMD open2017

Person-focused care for young people with rheumatic and musculoskeletal diseases: young rheumatologists' and EULAR Young PARE perspectives.

Alessia Alunno, Paul Studenic, Elena Nikiphorou, Petra Balážová, Linda van Nieuwkoop, Sofia Ramiro, Francesco Carubbi, Christophe Richez, Nele Caeyers, Laure Gossec and 1 more

Open access · goldAbstract read
In one paragraph

Article in RMD open, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
1.5field-weighted citation impact, top 14% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 7 citations in OpenAlex.

  1. Article
  2. Review
  3. Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors at 9 institutions in 7 countries.

Alessia AlunnoRheumatology Unit, Department of Medicine, University of Perugia, Perugia, Italy.
Paul StudenicDivision of Rheumatology, Department of Internal Medicine 3, Medical University Vienna, Vienna, Austria.
Elena NikiphorouDepartment of Academic Rheumatology, King's College London, London, UK.
Petra BalážováPatient, EULAR Young PARE, Zurich, Switzerland.
Linda van NieuwkoopPatient, EULAR Young PARE, Zurich, Switzerland.
Sofia RamiroDepartment of Rheumatology, Leiden University Medical Center, Leiden, The Netherlands.
Francesco CarubbiRheumatology Unit, Department of Biotechnological and Applied Clinical Sciences, University of L'Aquila, L'Aquila, Italy.
Christophe RichezDepartment of Rheumatology, FHU ACRONIM, Pellegrin Hospital and UMR CNRS 5164, Bordeaux University, Bordeaux, France.
Nele CaeyersPatient, EULAR Young PARE, Zurich, Switzerland.
Laure GossecSorbonne Universités, UPMC Univ Paris 06, Institut Pierre Louis d'Epidémiologie et de Santé Publique (UMRS 1136), Paris, France.
Marios KouloumasPatient, EULAR Young PARE, Zurich, Switzerland.
European League Against Rheumatism · CHZurich Heart House · CHCentre National de la Recherche Scientifique · FRKing's College London · GBLeiden University Medical Center · NLMedical University of Vienna · ATSorbonne Université · FRUniversity of L'Aquila · ITUniversity of Perugia · IT

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

In recent years, the evolution of healthcare challenged the management of people with rheumatic and musculoskeletal diseases (RMDs). From disease-centred care to person-focused care, a holistic approach along with patient empowerment about their disease, improved the physician-patient relationship and allowed to achieve better outcomes with lower healthcare costs. Nevertheless, RMDs may occur from childhood to the old age and to date very few studies have addressed the needs and priorities of young people with RMDs. However, the image of RMDs is still associated with the elderly population. In this regard, the group of young people with arthritis and rheumatism in Europe (PARE) was recently developed within European League Against Rheumatism to represent the voice of the young affected and to carry out projects aiming for a better understanding of these specific aspects. This viewpoint discusses the needs and priorities of young people compared with adult people with RMDs, based on the available literature and on the results of the PARE Youth research project, aiming to identify the next steps of actions that need to be taken to improve the current situation.

Indexed as

Health Services ResearchMultidisciplinary Team-carePatient Perspective

Identifiers

PMID29018568
PMCPMC5623325
OpenAlexW2758547416

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.