ArticleeNeurologicalSci2017
An exploration into caring for a stroke-survivor in Lima, Peru: Emotional impact, stress factors, coping mechanisms and unmet needs of informal caregivers.
Article in eNeurologicalSci, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers, 2 of them syntheses that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
22 citing papers in PubMed, 2 syntheses or guidelines pooled it, 57 citations in OpenAlex.
- Ischemic stroke in Peru: a scoping review of trends, outcomes, and evidence gaps.Frontiers in epidemiology · 2026Pooled it
- Quality of stroke guidelines in low- and middle-income countries: a systematic review.Bulletin of the World Health Organization · 2021Pooled it
- Estimating Quality of Life Decrements Due to Diabetes Complications in the United States: The Health Utility Index (HUI) Diabetes Complication Equation.PharmacoEconomics · 2019Trial
- Multimorbidity patterns, sociodemographic characteristics, and mortality: Data science insights from low-resource settings.American journal of epidemiology · 2026Article
- Knowledge, Attitudes and Practice of Informal Caregivers of People Living With Stroke: A Scoping Review of Recent Literature.Journal of advanced nursing · 2026Article
- Outcomes and Experiences of Patients and Their Caregivers After Severe Stroke Requiring Tube Feeding in Peru.Journal of pain and symptom management · 2024Article
- Psychological status on informal carers for stroke survivors at various phases: a cohort study in China.Frontiers in psychiatry · 2023Article
- Evaluation of a stroke rehabilitation training programme for community-based primary healthcare.African journal of disability · 2023Article
- A review of neurological health disparities in Peru.Frontiers in public health · 2023Review
- Information, involvement, self-care and support-The needs of caregivers of people with stroke: A grounded theory approach.PloS one · 2023Article
- Article
- The experience of informal caregivers in providing patient care in hospitals in low- and middle-income countries: A qualitative meta-synthesis.Journal of health services research & policy · 2022Review
- Multimorbidity.Nature reviews. Disease primers · 2022Review
- Needs of family members caring for stroke survivors in china: A deductive qualitative content analysis study by using the caregiver task inventory-25.BMC geriatrics · 2022Article
- Effectiveness of a support intervention for family caregivers and stroke survivors.Revista latino-americana de enfermagem · 2021Article
- Article
- Figuring it out by yourself: Perceptions of home-based care of stroke survivors, family caregivers and community health workers in a low-resourced setting, South Africa.African journal of primary health care & family medicine · 2020Article
- Needs for family caregivers of Cerebrovascular Accident survivors.Investigacion y educacion en enfermeria · 2020Article
- Validation of Bakas Caregiving Outcome Scale for brazilian portuguese.Revista latino-americana de enfermagem · 2020Article
- Caregiving Appraisal by Family Caregivers of Stroke Survivors in Nigeria.Journal of caring sciences · 2018Article
Corrections and comments
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Authors and funding
5 authors at 1 institution in 1 country.
Funding
Abstract
introductionUnderstanding local complexities and challenges of stroke-related caregiving are essential to develop appropriate interventions. Our study aimed to characterize the impact of post-stroke care among caregivers in a setting of transitioning economy. MATERIALS AND
methodsQualitative study based on in-depth interviews with primary caregivers of stroke survivors in Lima, Peru. Transcribed data was organized into the emotional impact of caregiving, main stress factors and coping mechanisms to deal with the caregiving role, as well as the unmet needs of caregivers.
resultsWe interviewed twelve caregivers, mean age 52.5 years, 8/12 were females, who were either the spouse or child of the stroke survivor. Stroke patients had a median age of 70 years, range 53-85 years. All participants reported having experienced emotional stress and depressive symptoms as a result of caregiving. Although most had family support, reduced social activities and added unanticipated financial burdens increased caregiver's stress. None of the caregivers had received training in post-stroke care tasks after the patient's discharge and only a few had received some psychological support, yet almost all expressed the need to see a professional to improve their mental health. Keeping a positive attitude towards their relative's physical post-stroke condition was a key coping mechanism.
conclusionsIn the absence of structured institutional responses, family members endure with the provision of care for stroke survivors, a task escorted by major emotional, financial, and social strains. This burden could be prevented or curtailed if caregivers were to be targeted by interventions providing psychological and financial support, together with basic training on post-stroke care.
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