Evidence map›Paper›PMID 28982247›Full record

ArticleDisability and rehabilitation2019

Defining and measuring recovery from myalgic encephalomyelitis and chronic fatigue syndrome: the physician perspective.

Andrew R Devendorf, Carly T Jackson, Madison Sunnquist, Leonard A Jason

Abstract read
In one paragraph

Article in Disability and rehabilitation, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers.

0numbers the graph read from it
0cells of the map it votes in
18citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

18 citing papers in PubMed.

  1. Trial
  2. Article
  3. Article
  4. Article
  5. Article
  6. Review
  7. Article
  8. Extremely Severe ME/CFS-A Personal Account.Healthcare (Basel, Switzerland) · 2021
    Article
  9. Article
  10. Article
  11. Article
  12. Review
  13. Review
  14. Article
  15. Article
  16. Article
  17. Article
  18. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Andrew R Devendorfa Department of Psychology , DePaul University , Chicago , IL , USA.ORCID 0000-0002-0142-6359
Carly T Jacksona Department of Psychology , DePaul University , Chicago , IL , USA.
Madison Sunnquista Department of Psychology , DePaul University , Chicago , IL , USA.
Leonard A Jasona Department of Psychology , DePaul University , Chicago , IL , USA.ORCID 0000-0002-9972-4425

Funding

Pediatric CFS in a Community-Based SampleR01HD072208 · NICHD · DE PAUL UNIVERSITY · PI JASON, LEONARD A · 2013 to 2017
$2.0M
NICHD NIH HHS R01 HD072208
6 · The paper itself

Abstract

purposeTo inform an operationalised definition of recovery from myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) for research and practice. Without a consensus on defining and measuring recovery, there will continue to be controversy amongst researchers, clinicians, and patients when interpreting treatment outcomes.

methodThis study explores physicians' views on recovery from ME and CFS. We conducted semi-structured interviews with 10 physician participants who are experts in the ME and CFS field. Our deductive thematic analysis, using a realist perspective, provided a framework for differentiating recovery and significant improvement.

resultsPhysicians conceptualised recovery as complete symptom remission and a return to premorbid functioning (adjusted for with age), whereas they viewed significant improvement as a substantial reduction in symptoms with considerable functional gains, where patients may operate in daily life but still must cope or be treated.

conclusionsOur findings provide recommendations and approaches for measuring: daily functioning, symptomatology, quality of life, and physical functioning. Implications for rehabilitation Physicians viewed recovery as complete symptom remission and a return to premorbid functioning (adjusted for with age). Recovery from myalgic encephalomyelitis and chronic fatigue syndrome should be viewed as multidimensional, considering patients' daily life, psychosocial functioning, and overall physical functioning. These findings can improve practitioner-client interactions, as they provide recommendations for measuring recovery in research and practice.

Indexed as

Fatigue Syndrome, ChronicPhysical Functional PerformancePhysiciansQuality of LifeRecovery of FunctionSymptom AssessmentActivities of Daily LivingAdultAttitude of Health PersonnelDisability EvaluationFemaleHumansMaleTreatment OutcomeassessmentChronic illnessphysical functioningprognosispsychosocial functioningqualitative

Identifiers

PMID28982247
PMCPMC6123286

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.