Evidence map›Paper›PMID 28974462›Full record

Trial reportJournal of the American Medical Directors Association2018

Quality Hospice Care in Adult Family Homes: Barriers and Facilitators.

Karla T Washington, George Demiris, Debra Parker Oliver, Gemille Purnell, Paul Tatum

Abstract readMulticenter StudyRandomized Controlled Trial
In one paragraph

Trial report in Journal of the American Medical Directors Association, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. State Variability in Assisted Living Residents' End-of-Life Care Trajectories.Journal of the American Medical Directors Association · 2020
    Observational
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Karla T WashingtonDepartment of Family and Community Medicine, University of Missouri, Columbia, MO. Electronic address: washingtonkar@health.missouri.edu.
George DemirisSchools of Medicine and Nursing, University of Washington, Seattle, WA.
Debra Parker OliverDepartment of Family and Community Medicine, University of Missouri, Columbia, MO.
Gemille PurnellSchool of Health Professions, University of Missouri, Columbia, MO.
Paul TatumDepartment of Family and Community Medicine, University of Missouri, Columbia, MO.

Funding

A Problem Solving Intervention for Hospice CaregiversR01NR012213 · NINR · UNIVERSITY OF WASHINGTON · PI DEMIRIS, GEORGE · 2011 to 2021
$4.2M
NINR NIH HHS R01 NR012213
6 · The paper itself

Abstract

objectivesOlder adults in need of residential services are increasingly spending their final days in small, domestic-style care settings such as adult family homes. In this study, we sought to identify processes that facilitated the provision of quality hospice care to seriously ill residents of adult family homes and their family members.

designWe conducted a secondary analysis of qualitative data collected as part of a randomized clinical trial of a problem-solving intervention for family members of hospice patients.

settingThe original trial was conducted in partnership with 2 large, community-based hospice agencies in the state of Washington.

participantsData from 73 family members of residents of adult family homes receiving hospice services were included in the analysis. MEASUREMENTS: Data were collected via semi-structured individual interviews, which were audio-recorded and transcribed prior to analysis.

resultsFamily members described quality hospice care in the adult family home as care that is consistent with residents and families' values and that results in comfort and social connectedness for residents while promoting peace of mind and decreasing burden for residents' families. They identified numerous processes that facilitated the provision of quality care including personalizing care, sharing information and expertise, working together to resolve conflicts, and prioritizing residents and families' values over existing or competing philosophies of care.

conclusionThe adult family home setting can amplify both the benefits and challenges associated with receipt of hospice. When choosing an adult family home, older adults and their families should strongly consider selecting a home with a track record of positive collaborations with hospice agencies if the need for end-of-life care is anticipated.

Indexed as

AgedAged, 80 and overFemaleHospice CareHumansMaleMiddle AgedQuality of Health CareResidential FacilitiesWashingtonAdult family homeend-of-life carefamilyhospicelong-term care

Identifiers

PMID28974462
PMCPMC5803394

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.