ArticleJournal of palliative medicine2018
Parenting in Childhood Life-Threatening Illness: A Mixed-Methods Study.
Article in Journal of palliative medicine, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
15 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- The spiritual dimension of parenting a child with a life-limiting or life-threatening condition: A mixed-methods systematic review.Palliative medicine · 2023Pooled it
- The challenges of medically complex breastfed children and their families: A systematic review.Maternal & child nutrition · 2021Pooled it
- A Nurse-Led, School-Based Social and Educational Intervention for Siblings of Children With Cancer (SUPREME): Process Evaluation of Perceived Impacts.Journal of advanced nursing · 2026Article
- Relationship Between Parental Distress and Proxy Symptom Reports in Pediatric Palliative Care.Journal of pain and symptom management · 2025Article
- Quantifying the Tolerability of Antipsychotic Treatment-Related Side Effects in Schizophrenia: A Survey Study of Patients and Caregiver Proxies.Patient preference and adherence · 2025Article
- "What about me?": lived experiences of siblings living with a brother or sister with a life-threatening or life-limiting condition.International journal of qualitative studies on health and well-being · 2024Article
- Health-illness transition processes in children with complex chronic conditions and their parents: a scoping review.BMC pediatrics · 2024Article
- Extending the concept of moral distress to parents of infants hospitalized in the NICU: a qualitative study in Greece.BMC psychology · 2024Article
- It's about living a normal life: parents' quality of life when their child has a life-threatening or life-limiting condition - a qualitative study.BMC palliative care · 2024Article
- Emotional upheaval, the essence of anticipatory grief in mothers of children with life threatening illnesses: a qualitative study.BMC psychology · 2022Article
- Enablers and barriers to effective parenting within the first 1000 days: an exploratory study of South African parents and primary caregivers in low socio-economic communities.BMC public health · 2022Article
- "Don't be afraid to speak up": Communication advice from parents and clinicians of children with cancer.Pediatric blood & cancer · 2021Article
- Keeping Hope Possible Toolkit: The Development and Evaluation of a Psychosocial Intervention for Parents of Infants, Children and Adolescents with Life Limiting and Life Threatening Illnesses.Children (Basel, Switzerland) · 2021Article
- Patient Trade-Offs Related to Analgesic Use for Cancer Pain: A MaxDiff Analysis Study.Pain management nursing : official journal of the American Society of Pain Management Nurses · 2020Article
- Measuring the Impact of the Home Health Nursing Shortage on Family Caregivers of Children Receiving Palliative Care.Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association · 2018Article
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
backgroundParenting children with life-threatening illness (LTI) and their healthy siblings requires parents to consider their various needs. OBJECTIVE AND
methodsWe conducted a concurrent, cross-sectional mixed-methods study to describe challenges parents face prioritizing tasks and goals for each child with qualitative data, compare parents' tasks and goals for children with LTI and healthy siblings with quantitative data, and describe parenting in terms of the process of prioritizing tasks and goals for all children in the family.
resultsParticipants included 31 parents of children with LTI who have healthy siblings and were admitted to a children's hospital. Qualitative interviews revealed how parents managed children's needs and their perceptions of the toll it takes. Quantitative data revealed that parents prioritized "making sure my child feels loved" highest for ill and healthy children. Other goals for healthy siblings focused on maintaining emotional connection and regularity within the family and for ill children focused on illness management. Mixed-methods analysis revealed that parents engaged in a process decision making and traded-off competing demands by considering needs which ultimately transformed the meaning of parenting. DISCUSSION: Future research can further examine trade-offs and associated effects, how to support parent problem-solving and decision-making around trade-offs, and how to best offer social services alongside illness-directed care.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.