ArticleTrials2017
Health research participants are not receiving research results: a collaborative solution is needed.
Article in Trials, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 27 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
27 citing papers in PubMed.
- Trial
- Widening participation in cognitive neuroscience: a mixed-methods study of age-related motivators, barriers and attitudes towards imaging methods.BMC medical research methodology · 2026Article
- Disseminating Research Results to Raise Awareness About Child Farmworker Health Through Youth-Driven Participatory Infographics.Journal of participatory research methods · 2026Article
- Bridging the Gap: Recommendations for Sustainable Research Partnerships Between Community Health and Academic Health Centers.Journal of health care for the poor and underserved · 2026Article
- A multi-perspective study assessing Black and African American participation barriers in prostate cancer clinical trials.Future oncology (London, England) · 2025Article
- Genetic and biomarker disclosure process in a memory and aging study.Journal of Alzheimer's disease : JAD · 2025Article
- Digital Information Exchange Between the Public and Researchers in Health Studies: Scoping Review.Journal of medical Internet research · 2025Article
- Leveraging artificial intelligence to summarize abstracts in lay language for increasing research accessibility and transparency.Journal of the American Medical Informatics Association : JAMIA · 2024Article
- Patient engagement in hematopoietic stem cell transplantation and cell therapy: a survey by the EBMT patient engagement task force & transplantation complications working party.Bone marrow transplantation · 2024Article
- Healthy food delivery for type 2 diabetes management in rural clinics' patients: A comparative effectiveness randomized controlled trial protocol.Contemporary clinical trials · 2024Article
- Developmental changes in individual alpha frequency: Recording EEG data during public engagement events.Imaging neuroscience (Cambridge, Mass.) · 2023Article
- Return of aggregate results to study participants: Facilitators, barriers, and recommendations.Contemporary clinical trials communications · 2023Article
- Article
- Engaging participants with research findings: A rights-informed approach.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Creating a best practice template for participant communication plans in global health clinical studies.Trials · 2023Article
- Sharing results with participants (and community) in malaria related research: Perspectives and experience from researchers.PLOS global public health · 2023Article
- Training researchers in dissemination of study results to research participants and communities.Translational behavioral medicine · 2021Article
- Correlates of attendance at community engagement meetings held in advance of bio-behavioral research studies: A longitudinal, sociocentric social network study in rural Uganda.PLoS medicine · 2021Article
- Preferences for Updates on General Research Results: A Survey of Participants in Genomic Research from Two Institutions.Journal of personalized medicine · 2021Article
- Returning individual-specific results of a dementia prevalence study: insights from prospective participants living in Switzerland.International journal of geriatric psychiatry · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
Abstract
Health research participants want the results of the studies in which they participate but do not typically receive them. Researchers generally express support for sharing results with participants but, in practice, may be unprepared or unwilling to do so. Many funders call for increased dissemination of research results beyond academic and clinical audiences, but few funders sponsor research to improve result sharing with participants. Although the solution appears straightforward (e.g., funders could incentivize researchers to share results with participants), there are critical gaps in knowledge that suggest the need for a more deliberate approach. For example, what ethical or practical concerns discourage researchers from returning results to participants? What exactly do participants plan to do with the results that they would like to receive? What are the best channels of communication for sharing results with particular participant populations? To address these knowledge gaps, we argue for a collaborative process to develop a research agenda related to result sharing with participants. With support and encouragement by funders, such research should evaluate the effects of different types of results (and results from different types of studies) on participants' behaviors, attitudes, and emotions; it should also examine the researchers' ethical, financial, logistical, methodological, and skill-related concerns and constraints related to sharing results with participants. Over time, collaborative research between researchers and participants can yield an evolving set of evidence-based guidelines for ethical, effective result sharing with participants.
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.