Evidence map›Paper›PMID 28944441›Full record

ArticleJournal of genetic counseling2018

Translation and Cross-Cultural Adaptation with Preliminary Validation of GCOS-24 for Use in Spain.

Patricia Muñoz-Cabello, Sixto García-Miñaúr, Manuel Eliecer Espinel-Vallejo, Lorenzo Fernández-Franco, Alexandra Stephens, Fernando Santos-Simarro, Pablo Lapunzina-Badía, Marion McAllister

Abstract read
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In one paragraph

Article in Journal of genetic counseling, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.

0numbers the graph read from it
0cells of the map it votes in
13citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

13 citing papers in PubMed.

  1. Trial
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  4. Article
  5. Survey research in genetic counseling.Journal of genetic counseling · 2025
    Article
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  7. Article
  8. Article
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  10. Using Rasch measurement theory to explore the fitness for purpose of the genetic counseling outcome scale: a tale of two scales.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023
    Article
  11. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Patricia Muñoz-CabelloSección de Genética Clínica, Instituto de Genética Médica y Molecular (INGEMM), Hospital Universitario La Paz, Paseo Castellana, 261, E-28046, Madrid, Spain.
Sixto García-MiñaúrSección de Genética Clínica, Instituto de Genética Médica y Molecular (INGEMM), Hospital Universitario La Paz, Paseo Castellana, 261, E-28046, Madrid, Spain. sixto.garcia@salud.madrid.org.ORCID 0000-0003-3406-3424
Manuel Eliecer Espinel-VallejoDepartamento de Sociología I, Facultad de Ciencias Políticas y Sociología, Universidad Complutense de Madrid, Madrid, Spain.
Lorenzo Fernández-FrancoDepartamento de Sociología I, Facultad de Ciencias Políticas y Sociología, Universidad Complutense de Madrid, Madrid, Spain.
Alexandra StephensCosmos S.L., Madrid, Spain.
Fernando Santos-SimarroSección de Genética Clínica, Instituto de Genética Médica y Molecular (INGEMM), Hospital Universitario La Paz, Paseo Castellana, 261, E-28046, Madrid, Spain.
Pablo Lapunzina-BadíaSección de Genética Clínica, Instituto de Genética Médica y Molecular (INGEMM), Hospital Universitario La Paz, Paseo Castellana, 261, E-28046, Madrid, Spain.
Marion McAllisterCentre for Medical Education, School of Medicine, Cardiff University, Heath Park, Cardiff, UK.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

The aim in this study was to translate and cross-culturally adapt the Genetic Counseling Outcome Scale (GCOS-24) for use in Spain and to carry out a preliminary psychometric validation in a sample of Spanish patients. With oversight by an expert panel, forward and backward translations were conducted to create the draft Spanish GCOS-24. Fourteen patients were recruited from a clinical genetics service in Madrid, Spain, to participate in cognitive interviews designed to explore readability and interpretability of the draft. Following qualitative analysis of interview transcripts, a final version of the Spanish GCOS-24 was agreed with the expert panel. No significant cross-cultural differences were identified. The Spanish GCOS-24 was then completed prior to and 2-4 weeks after genetic counseling by 59 patients attending the service, and data were analysed using analysis of variance. Preliminary psychometric validation of the Spanish GCOS-24 showed significantly higher GCOS-24 scores after genetic counseling (p < 0.0001), with good internal consistency (α = 0.84) and sensitivity to change over time, with a medium-to-large size effect (Cohen's d = 0.70). This compares well with the original English language GCOS-24. Findings demonstrate that the Spanish GCOS-24 has potential for use in evaluating clinical genetics services in Spain, but would benefit from assessment of test-retest reliability as well as structural and construct validity.

Indexed as

Genetic CounselingAdultCross-Cultural ComparisonFemaleHumansLanguageMaleMiddle AgedPsychometricsReproducibility of ResultsSpainSurveys and QuestionnairesTranslatingTranslationsClinical genetics servicesCultural adaptationEmpowermentEvaluationGenetic counselingPatient-reported outcome measureTranslation

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.