ArticlePediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies2017
Discussing Benefits and Risks of Tracheostomy: What Physicians Actually Say.
Article in Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers.
What it found
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
18 citing papers in PubMed.
- Using Narratives to Correct Forecasting Errors in Pediatric Tracheostomy Decision Making.Medical decision making : an international journal of the Society for Medical Decision Making · 2021Trial
- Families' Experiences Making Decisions across Time and Settings in Chronic Critical Illness.Annals of the American Thoracic Society · 2025Article
- Parental Values During Tracheostomy Decision-Making for Their Critically Ill Child: Interviews of Parents Who Just Made the Decision.Children (Basel, Switzerland) · 2025Article
- Addressing Education and Care Gaps in Tracheostomy Management: Insights from a Multi-Stakeholder Global Survey.Tracheostomy (Warrenville, Ill.) · 2025Article
- Candidacy Decisions for Long-term Ventilation.Pediatrics · 2024Article
- Evaluating caregiver-clinician communication for tracheostomy placement in the neonatal intensive care unit: a qualitative inquiry.Journal of perinatology : official journal of the California Perinatal Association · 2024Article
- Home values and experiences navigation track (HomeVENT): Supporting decisions about pediatric home ventilation.PEC innovation · 2023Article
- Providing care for children with tracheostomies: a qualitative interview study with parents and health professionals.BMJ open · 2023Article
- Adapting user-centered design principles to improve communication of peer parent narratives on pediatric tracheostomy.BMC medical informatics and decision making · 2022Article
- Clinical Proof of Concept for Stabilization of Tracheostomy Tubes Using Novel DYNAtraq Device.Medical devices (Auckland, N.Z.) · 2022Article
- Development and validation of a novel informational booklet for pediatric long-term ventilation decision support.Pediatric pulmonology · 2021Article
- "This Is How Hard It Is". Family Experience of Hospital-to-Home Transition with a Tracheostomy.Annals of the American Thoracic Society · 2020Article
- Parental Conflict, Regret, and Short-term Impact on Quality of Life in Tracheostomy Decision-Making.Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies · 2020Article
- Decisions for Long-Term Ventilation for Children. Perspectives of Family Members.Annals of the American Thoracic Society · 2020Article
- Pediatric Long-Term Endotracheal Intubation and Role for Tracheostomy: Patient and Provider Factors.Journal of pediatric intensive care · 2019Article
- Caregiver Perceptions about their Decision to Pursue Tracheostomy for Children with Medical Complexity.The Journal of pediatrics · 2018Article
- Pediatric palliative care in the intensive care unit and questions of quality: a review of the determinants and mechanisms of high-quality palliative care in the pediatric intensive care unit (PICU).Translational pediatrics · 2018Review
- "What choice do you have knowing your child can't breathe?!": Adaptation to Parenthood for Children Who Have Received a Tracheostomy.SAGE open nursingArticle
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Authors and funding
4 authors.
Funding
Abstract
objectivesWhen contemplating tracheostomy placement in a pediatric patient, a family-physician conference is often the setting for the disclosure of risks and benefits of the procedure. Our objective was to compare benefits and risks of tracheostomy presented during family-physician conferences to an expert panel's recommendations for what should be presented.
designWe conducted a retrospective review of 19 transcripts of audio-recorded family-physician conferences regarding tracheostomy placement in children. A multicenter, multidisciplinary expert panel of clinicians was surveyed to generate a list of recommended benefits and risks for comparison. Primary analysis of statements by clinicians was qualitative.
settingSingle-center PICU of a tertiary medical center. SUBJECTS: Family members who participated in family-physician conferences regarding tracheostomy placement for a critically ill child from April 2012 to August 2014. MEASUREMENTS AND MAIN
resultsWe identified 300 physician statements describing benefits and risks of tracheostomy. Physicians were more likely to discuss benefits than risks (72% vs 28%). Three broad categories of benefits were identified: 1) tracheostomy would limit the impact of being in the PICU (46%); 2) perceived obstacles of tracheostomy can be overcome (34%); and 3) tracheostomy optimizes respiratory health (20%). Risks fell into two categories: tracheostomy involves a big commitment (71%), and it has complications (29%). The expert panel's recommendations were similar to risks and benefits discussed during family conferences; however, they suggested physicians present an equal balance of discussion of risks and benefits.
conclusionsWhen discussing tracheostomy placement, physicians emphasized benefits that are shared by physicians and families while minimizing the risks. The expert panel recommended a balanced approach by equally weighing risks and benefits. To facilitate educated decision making, physicians should present a more extensive range of risks and benefits to families making this critical decision.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.