ArticleLife sciences, society and policy2017
An ethical assessment model for digital disease detection technologies.
Article in Life sciences, society and policy, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 2 of them syntheses that pooled it.
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Who cites it
14 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Which Framework to Use? A Systematic Review of Ethical Frameworks for the Screening or Evaluation of Health Technology Innovations.Science and engineering ethics · 2022Pooled it
- Ethics, Integrity, and Retributions of Digital Detection Surveillance Systems for Infectious Diseases: Systematic Literature Review.Journal of medical Internet research · 2021Pooled it
- It's late, but not too late to transform health systems: a global digital citizen science observatory for local solutions to global problems.Frontiers in digital health · 2024Article
- Ethical and legal considerations in social media research for health technology assessment: conclusions from a scoping review.International journal of technology assessment in health care · 2023Article
- Enabling Multicentric Participatory Disease Surveillance for Global Health Enhancement: Viewpoint on Global Flu View.JMIR public health and surveillance · 2023Article
- The role of AI technology in prediction, diagnosis and treatment of colorectal cancer.Artificial intelligence review · 2022Article
- Artificial Intelligence and Telehealth may Provide Early Warning of Epidemics.Frontiers in artificial intelligence · 2021Article
- A New Era of Epidemiology: Digital Epidemiology for Investigating the COVID-19 Outbreak in China.Journal of medical Internet research · 2020Article
- Toward Detecting Infection Incidence in People With Type 1 Diabetes Using Self-Recorded Data (Part 1): A Novel Framework for a Personalized Digital Infectious Disease Detection System.Journal of medical Internet research · 2020Article
- A Global Digital Citizen Science Policy to Tackle Pandemics Like COVID-19.Journal of medical Internet research · 2020Article
- Social Media- and Internet-Based Disease Surveillance for Public Health.Annual review of public health · 2020Review
- Ethical Considerations for Movement Mapping to Identify Disease Transmission Hotspots.Emerging infectious diseases · 2019Article
- Cross-Sectoral Big Data: The Application of an Ethics Framework for Big Data in Health and Research.Asian bioethics review · 2019Article
- Primary Care Physicians' and Patients' Perspectives on Equity and Health Security of Infectious Disease Digital Surveillance.Annals of family medicineArticle
Corrections and comments
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Authors and funding
1 author.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Digital epidemiology, also referred to as digital disease detection (DDD), successfully provided methods and strategies for using information technology to support infectious disease monitoring and surveillance or understand attitudes and concerns about infectious diseases. However, Internet-based research and social media usage in epidemiology and healthcare pose new technical, functional and formal challenges. The focus of this paper is on the ethical issues to be considered when integrating digital epidemiology with existing practices. Taking existing ethical guidelines and the results from the EU project M-Eco and SORMAS as starting point, we develop an ethical assessment model aiming at providing support in identifying relevant ethical concerns in future DDD projects. The assessment model has four dimensions: user, application area, data source and methodology. The model supports in becoming aware, identifying and describing the ethical dimensions of DDD technology or use case and in identifying the ethical issues on the technology use from different perspectives. It can be applied in an interdisciplinary meeting to collect different viewpoints on a DDD system even before the implementation starts and aims at triggering discussions and finding solutions for risks that might not be acceptable even in the development phase. From the answers, ethical issues concerning confidence, privacy, data and patient security or justice may be judged and weighted.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.