ArticleAutism : the international journal of research and practice2018
The importance of context in early autism intervention: A qualitative South African study.
Article in Autism : the international journal of research and practice, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
24 citing papers in PubMed, 1 synthesis or guideline pooled it, 68 citations in OpenAlex.
- A Conceptual Framework for Understanding the Cultural and Contextual Factors on Autism Across the Globe.Autism research : official journal of the International Society for Autism Research · 2020Pooled it
- Community Perceptions of the Causes of Autism and Help-Seeking Responses: A Multi-Site Qualitative Study Across Northern Uganda.Autism : the international journal of research and practice · 2026Article
- Adapting an early autism caregiver coaching intervention for telehealth delivery in low-resource settings: A South African study of the 'what' and the 'why'.Autism : the international journal of research and practice · 2025Article
- Striving to provide conditional access: strategies parents use to mediate the screentime of their children with autism spectrum disorder.Frontiers in child and adolescent psychiatry · 2025Article
- Enhanced Milieu Teaching in resource-constrained settings: Stakeholder-informed adaptation guidelines.The South African journal of communication disorders = Die Suid-Afrikaanse tydskrif vir Kommunikasieafwykings · 2024Article
- Autism Caregiver Coaching in Africa (ACACIA): Protocol for a type 1-hybrid effectiveness-implementation trial.PloS one · 2024Article
- "Frontiers in psychiatry · 2024Article
- The Unmasking of Autism in South Africa and Nigeria.Neuropsychiatric disease and treatment · 2024Review
- Exploring the landscape of autism in Africa: challenges in diagnosis, support, and resources - a short communication.Annals of medicine and surgery (2012) · 2023Article
- Autism Caregiver Coaching in Africa (ACACIA): Protocol for a type 1-hybrid effectiveness-implementation trial.medRxiv : the preprint server for health sciences · 2023Article
- Improving access to early intervention for autism: findings from a proof-of-principle cascaded task-sharing naturalistic developmental behavioural intervention in South Africa.Child and adolescent psychiatry and mental health · 2023Article
- World Health Organisation-Caregiver Skills Training (WHO-CST) Program: Feasibility of Delivery by Non-Specialist Providers in Real-world Urban Settings in India.Journal of autism and developmental disorders · 2023Article
- Towards a "New Mothering" Practice? The Life Experiences of Mothers Raising a Child with Autism in Urban Ethiopia.International journal of environmental research and public health · 2023Article
- Improving access to early intervention for autism - findings from a proof-of-principle cascaded task-sharing naturalistic developmental behavioural intervention in South Africa.Research square · 2023Article
- The experiences of speech-language therapists providing telerehabilitation services to children with autism spectrum disorder.The South African journal of communication disorders = Die Suid-Afrikaanse tydskrif vir Kommunikasieafwykings · 2022Article
- Exploring contextual adaptations in caregiver interventions for families raising children with developmental disabilities.PloS one · 2022Article
- "We are doing the best we can to bridge the gap" - service provider perspectives of educational services for autism spectrum disorder in South Africa.Frontiers in psychiatry · 2022Article
- Pragmatic adaptations of telehealth-delivered caregiver coaching for children with autism in the context of COVID-19: Perspectives from the United States and South Africa.Autism : the international journal of research and practice · 2022Article
- Children with Autism Spectrum Disorders in Low-Resource Settings: Reported Experiences and Needs of Parents in Mongolia.Journal of autism and developmental disorders · 2021Article
- 'A blender without the lid on': Mealtime experiences of caregivers with a child with autism spectrum disorder in South Africa.The South African journal of communication disorders = Die Suid-Afrikaanse tydskrif vir Kommunikasieafwykings · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 3 institutions in 2 countries.
Funding
Abstract
The majority of individuals with autism spectrum disorder live in low- and middle-income countries and receive little or no services from health or social care systems. The development and validation of autism spectrum disorder interventions has almost exclusively occurred in high-income countries, leaving many unanswered questions regarding what contextual factors would need to be considered to ensure the effectiveness of interventions in low- and middle-income countries. This study qualitatively explored contextual factors relevant to the adaptation of a caregiver-mediated early autism spectrum disorder intervention in a low-resource South African setting. We conducted four focus groups and four in-depth interviews with 28 caregivers of young children with autism spectrum disorder and used thematic analysis to identify key themes. Eight contextual factors including culture, language, location of treatment, cost of treatment, type of service provider, support, parenting practices, and stigma emerged as important. Caregivers reported a preference for an affordable, in-home, individualized early autism spectrum disorder intervention, where they have an active voice in shaping treatment goals. Distrust of community-based health workers and challenges associated with autism spectrum disorder-related stigma were identified. Recommendations that integrate caregiver preferences with the development of a low-cost and scalable caregiver-mediated early autism spectrum disorder intervention are included.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.