ReviewInternational journal of qualitative studies on health and well-being2017
Ethical and methodological issues in qualitative studies involving people with severe and persistent mental illness such as schizophrenia and other psychotic conditions: a critical review.
Review in International journal of qualitative studies on health and well-being, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.
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Who cites it
16 citing papers in PubMed.
- Refining the NEED (Needs Examination, Evaluation and Dissemination) Methods for Use in Psychotic Disorders in Belgium: Lessons From the Design Phase.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Ensuring High Quality Oyster Care for People Experiencing Severe and Persistent Mental Illness - A Three-Phase Development of A Quality Monitoring Tool.Community mental health journal · 2026Article
- '…It Makes It Possible for Me to Have a Life…': Microtransformative Helpline Communication with Frequent Users.Journal of community psychology · 2026Article
- Mapping ethical issues encompassing end-of-life care for persons experiencing severe and persistent mental illness: a qualitative study.BMC medical ethics · 2025Article
- How to engage people experiencing severe and persistent mental illness in qualitative research: a descriptive and reflexive analysis.International journal of qualitative studies on health and well-being · 2024Article
- Qualitative Research on the Topic of End-of-Life Care and a Palliative Care Approach in Persons with Severe and Persistent Mental Illness: Reflections and Take-Home Messages.Alpha psychiatry · 2024Article
- Research ethics in practice: An analysis of ethical issues encountered in qualitative health research with mental health service users and relatives.Medicine, health care, and philosophy · 2023Article
- Mapping the ethical aspects in end-of-life care for persons with a severe and persistent mental illness: A scoping review of the literature.Frontiers in psychiatry · 2023Article
- Coping with adverse childhood experiences during the COVID-19 pandemic: Perceptions of mental health service providers.Frontiers in psychology · 2022Article
- Engaging citizens living in vulnerable circumstances in research: a narrative review using a systematic search.Research involvement and engagement · 2021Review
- Oyster Care: An Innovative Palliative Approach towards SPMI Patients.Frontiers in psychiatry · 2020Article
- Patients' Experiences of Participating Actively in Shared Decision-Making in Mental Care.Journal of patient experience · 2019Article
- Article
- Perspectives on power relations in human health and well-being.International journal of qualitative studies on health and well-being · 2017Article
- Qualitative research methods in psychiatry in India: Landscaping the terrain.Indian journal of psychiatryArticle
- Improvements in Transitional Care Among Medicaid-Insured Patients With Serious Mental Illness.Journal of nursing care qualityArticle
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Undertaking research studies in the field of mental health is essential in mental health nursing. Qualitative research methodologies enable human experiences to become visible and recognize the importance of lived experiences. This paper argues that involving people with schizophrenia in research is critical to promote their health and well-being. The quality of qualitative research needs scrutinizing according to methodological issues such as trustworthiness and ethical standards that are a fundamental part of qualitative research and nursing curricula. The aim of this study was to critically review recent qualitative studies involving people with severe and persistent mental illness such as schizophrenia and other psychotic conditions, regarding descriptions of ethical and methodological issues in data collection and analysis. A search for relevant papers was conducted in three electronic databases, in December 2016. Fifteen qualitative interview studies were included and reviewed regarding methodological issues related to ethics, and data collection and analysis. The results revealed insufficient descriptions of methodology regarding ethical considerations and issues related to recruitment and sampling in qualitative interview studies with individuals with severe mental illness, putting trustworthiness at risk despite detailed descriptions of data analysis. Knowledge from the perspective of individuals with their own experience of mental illness is essential. Issues regarding sampling and trustworthiness in qualitative studies involving people with severe mental illness are vital to counteract the stigmatization of mental illness.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.