ArticleClinical rehabilitation2018
The impact of self-perceived limitations, stigma and sense of coherence on quality of life in multiple sclerosis patients: results of a cross-sectional study.
Article in Clinical rehabilitation, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers, 2 of them syntheses that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
23 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Stigma and health outcomes in multiple sclerosis: a systematic review.BMC neurology · 2024Pooled it
- Pooled it
- Perceptions of Illness Control, Coherence, and Self-Efficacy Following a Web-Based Lifestyle Program for Multiple Sclerosis: A Qualitative Analysis of Semistructured Interviews.Journal of medical Internet research · 2024Trial
- Understanding stigma in multiple sclerosis: workplace discrimination, social challenges and psychological impacts.Acta neurologica Belgica · 2026Article
- A mixed-methods cross-sectional study on the associations between internalized stigma, physical activity, and quality of life in people with multiple sclerosis.Scientific reports · 2025Article
- Impact of general population stigmatization toward marriage in patients diagnosed with multiple sclerosis: a cross-sectional study.BMC neurology · 2025Article
- Assessment of social stigma among multiple sclerosis patients in Saudi Arabia: A cross-sectional study.Neurosciences (Riyadh, Saudi Arabia) · 2024Article
- Validity and reliability of the Persian version of Recce stigma scale in people with multiple sclerosis and its impact on quality of life.BMC neurology · 2024Article
- Social stigma and its relationship with quality of life in multiple sclerosis patients.BMC neurology · 2023Article
- Multiple sclerosis and mental health related quality of life: The role of defense mechanisms, defense styles and family environment.AIMS neuroscience · 2023Article
- Stigma in Multiple Sclerosis: The Important Role of Sense of Coherence and Its Relation to Quality of Life.International journal of behavioral medicine · 2022Article
- Sense of Coherence and Health-Related Quality of Life in Patients with Multiple Sclerosis: The Role of Physical and Neurological Disability.Journal of clinical medicine · 2022Article
- Disabled in Society - A Scoping Review on Persons Living with Multiple Sclerosis and Disability.Journal of multidisciplinary healthcare · 2022Article
- Stigma and Quality of Life in Women With Breast Cancer: Mediation and Moderation Model of Social Support, Sense of Coherence, and Coping Strategies.Frontiers in psychology · 2022Article
- Impact of sense of coherence on quality of life in patients with multiple sclerosis.Wiener klinische Wochenschrift · 2021Article
- Perception of Stigma in Patients with Neuromyelitis Optica Spectrum Disorder.Patient preference and adherence · 2021Article
- Exploring the co-involvement of disabled adolescents in participatory action research; protocol for a critical interpretative synthesis.HRB open research · 2021Article
- Physical Activity, Resilience, Sense of Coherence and Coping in People with Multiple Sclerosis in the Situation Derived from COVID-19.International journal of environmental research and public health · 2020Article
- Validation of the Slovenian Version of Short Sense of Coherence Questionnaire (SOC-13) in Multiple Sclerosis Patients.Zdravstveno varstvo · 2019Article
- Stigma in Multiple Sclerosis: A Narrative Review of Current Concepts, Measures, and Findings.International journal of MS careArticle
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveTo examine the impact of perceived limitations, stigma and sense of coherence on quality of life in multiple sclerosis patients.
designCross-sectional survey.
settingDepartment of Neurology, University Medical Center Groningen, the Netherlands. SUBJECTS: Multiple sclerosis patients. MAIN MEASURES: World Health Organization Quality of Life - abbreviated version, Stigma Scale for Chronic Illness, Sense of Coherence Scale, background and disease-related questions.
resultsIn total, 185 patients (61% response rate) participated in the study with moderate to severe limitations. Stigma was highly prevalent but low in severity. Patients with a higher sense of coherence experienced a lower level of limitations ( B = -0.063, P < 0.01) and less stigma (enacted stigma B = -0.030, P < 0.01; self-stigma B = -0.037, P < 0.01). Patients with a higher level of limitations experienced more stigma (enacted stigma B = 0.044, P < 0.05; self-stigma B = 0.063, P < 0.01). Patients with a higher sense of coherence experienced better quality of life (physical health B = 0.059, P < 0.01; psychological health B = 0.062, P < 0.01; social relationships B = 0.052, P < 0.01; environmental aspects B = 0.030, P < 0.01). Patients with a higher level of limitations experienced poorer quality of life (physical health B = -0.364, P < 0.01; psychological health B = -0.089, P < 0.05) and patients with more stigma also experienced poorer quality of life (self-stigma: physical health B = -0.073, P < 0.01; psychological health B = -0.089, P < 0.01; social relationships B = -0.124, P < 0.01; environmental aspects B = -0.052, P < 0.01, and enacted stigma: physical health B = -0.085, P < 0.10).
conclusionPatients with less perceived limitations and stigma and a higher level of sense of coherence experienced better quality of life. Patients with a higher sense of coherence experienced a lower level of limitations and less stigma.
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