Evidence map›Paper›PMID 28888223›Full record

ArticlePediatric rheumatology online journal2017

Assessment of transition readiness in adolescents and young adults with chronic health conditions.

Paul T Jensen, Gabrielle V Paul, Stephanie LaCount, Juan Peng, Charles H Spencer, Gloria C Higgins, Brendan Boyle, Manmohan Kamboj, Christopher Smallwood, Stacy P Ardoin

Registry-linked trialOpen access · goldAbstract read
In one paragraph

Article in Pediatric rheumatology online journal, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05520983 (BEhavioral Health Stratified Treatment), which is not on this map. Cited by 46 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
46citing papers in PubMed, 1 pooled it
14.3field-weighted citation impact, top 1% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT05520983 naenrolling by invitationnot on this mapstarted 2022, after this paper: background citation

BEhavioral Health Stratified Treatment (BEST) to Optimize Transition to Adulthood for Youth With Intellectual and/or Developmental Disabilities (IDD)

TypeinterventionalSponsorUniversity of Illinois at ChicagoRan2022 to 2028Enrolled780ConditionsDepression, Anxiety, TransitionArmsAdapted Teens Achieving Mastery over Stress (TEAMS) Treatment, Adapted Teens Achieving Mastery over Stress (TEAMS) Prevention, Adapted Competent Adulthood Transition with Cognitive-behavioral & Interpersonal Training (CATCH-IT), Strengthening Families, Virtual psycho-educational discussion groups for caregivers and participants
3 · Its place in the literature

Who cites it

46 citing papers in PubMed, 1 synthesis or guideline pooled it, 86 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors at 2 institutions in 1 country.

Paul T JensenDivision of Rheumatology, Nationwide Children's Hospital, 700 Children's Drive, Columbus, OH, 43205, USA.
Gabrielle V PaulThe Ohio State University College of Medicine, 370 W. 9th Avenue, Columbus, OH, 43210, USA.
Stephanie LaCountDivision of Rheumatology, Nationwide Children's Hospital, 700 Children's Drive, Columbus, OH, 43205, USA.
Juan PengThe Ohio State University Center for Biostatistics, 320 Lincoln Tower, Columbus, OH, 43210, USA.
Charles H SpencerDivision of Rheumatology, Nationwide Children's Hospital, 700 Children's Drive, Columbus, OH, 43205, USA.
Gloria C HigginsDivision of Rheumatology, Nationwide Children's Hospital, 700 Children's Drive, Columbus, OH, 43205, USA.
Brendan BoyleDivision of Rheumatology, Nationwide Children's Hospital, 700 Children's Drive, Columbus, OH, 43205, USA.
Manmohan KambojDivision of Rheumatology, Nationwide Children's Hospital, 700 Children's Drive, Columbus, OH, 43205, USA.
Christopher SmallwoodDivision of Rheumatology, Nationwide Children's Hospital, 700 Children's Drive, Columbus, OH, 43205, USA.
Stacy P ArdoinDivision of Rheumatology, Nationwide Children's Hospital, 700 Children's Drive, Columbus, OH, 43205, USA. stacy.ardoin@osumc.edu.
The Ohio State University · USNationwide Children's Hospital · US

Funding

The Ohio State University Center for Clinical and Translational ScienceKL2TR001068 · NCATS · OHIO STATE UNIVERSITY · PI JACKSON, REBECCA D · 2013 to 2017
$2.7M
NCATS NIH HHS KL2 TR001068
6 · The paper itself

Abstract

backgroundTransition from pediatric to adult health care is a vulnerable period for adolescents and young adults. Challenges include paucity of validated measures to assess patients' transition readiness. We evaluated the Transition Readiness Assessment Questionnaire (TRAQ) in adolescents and young adults with rheumatic, gastrointestinal, and endocrine disorders. We examined whether baseline TRAQ scores and other demographic variables predicted transition to adult care over a three year follow up period.

methodsIn this descriptive study at a single institution, eighty-nine adolescents at a single pediatric academic medical center completed demographic and medical history surveys and the TRAQ and were followed over 3 years by telephone interview to determine whether they had transitioned to adult subspecialty care. Transition was defined as attending at least one adult subspecialty appointment. Multivariable logistic regression and Cox proportional hazards regression models were used to determine whether TRAQ scores predicted time to transition.

resultsOf the participants, 56% had rheumatic, 21% endocrine, and 23% gastrointestinal conditions. The TRAQ self-management domain score was not significantly associated with age, gender, socioeconomic status, or specialty. The TRAQ self-advocacy score increased with age. Baseline TRAQ scores did not predict transition or time to transition over three years.

conclusionIn this cohort of adolescents and young adults who were 16 to 23 years of age at enrollment, 48% transitioned to adult care over three years of follow up. Nearly half reported not discussing transition with provider or seeing provider independently for part of visit. Older age but not other demographic variables nor baseline TRAQ score predicted transition or time to transition to an adult subspecialty provider; however, a there was a trend towards shorter time to transition with the highest quartile TRAQ scores.

Indexed as

AdolescentAdultChronic DiseaseFemaleFollow-Up StudiesHumansLogistic ModelsLongitudinal StudiesMaleProportional Hazards ModelsSelf CareSurveys and QuestionnairesTransition to Adult CareYoung AdultAdolescentAdultChronic health conditionsTransition readinessYoung adult

Identifiers

PMID28888223
PMCPMC5591570
OpenAlexW2753567880

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.