Evidence map›Paper›PMID 28886974›Full record

ArticlePatient education and counseling2018

Informational needs during active surveillance for prostate cancer: A qualitative study.

Stacy Loeb, Caitlin Curnyn, Angela Fagerlin, R Scott Braithwaite, Mark D Schwartz, Herbert Lepor, H Ballentine Carter, Shannon Ciprut, Erica Sedlander

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Patient education and counseling, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
12citing papers in PubMed, 3 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

12 citing papers in PubMed, 3 syntheses or guidelines pooled it.

  1. Pooled it
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Stacy LoebDepartment of Urology, New York University, New York City, USA; Department of Population Health, New York University, New York City, USA; Perlmutter Cancer Center, New York University, New York City, USA; Manhattan Veterans Affairs Medical Center, New York City, USA. Electronic address: stacyloeb@gmail.com.
Caitlin CurnynDepartment of Population Health, New York University, New York City, USA; Manhattan Veterans Affairs Medical Center, New York City, USA.
Angela FagerlinDepartment of Population Health Sciences, University of Utah & VA Salt Lake City Health Care System, Salt Lake City, USA.
R Scott BraithwaiteDepartment of Population Health, New York University, New York City, USA.
Mark D SchwartzDepartment of Population Health, New York University, New York City, USA; Manhattan Veterans Affairs Medical Center, New York City, USA.
Herbert LeporDepartment of Urology, New York University, New York City, USA; Perlmutter Cancer Center, New York University, New York City, USA.
H Ballentine CarterBrady Urological Institute, Johns Hopkins Hospital, Baltimore, USA.
Shannon CiprutDepartment of Urology, New York University, New York City, USA; Department of Population Health, New York University, New York City, USA; Manhattan Veterans Affairs Medical Center, New York City, USA.
Erica SedlanderDepartment of Population Health, New York University, New York City, USA; Manhattan Veterans Affairs Medical Center, New York City, USA.

Funding

Vaccine FacilityP30CA016087 · NCI · NEW YORK UNIVERSITY SCHOOL OF MEDICINE · PI Richard Lewis Possemato · 1985 to 2026
$83.1M
Optimal Strategy for Conservative Management of Prostate CancerK07CA178258 · NCI · NEW YORK UNIVERSITY SCHOOL OF MEDICINE · PI LOEB, STACY · 2013 to 2017
$889k
NCI NIH HHS K07 CA178258NCI NIH HHS P30 CA016087NIH HHS P30CA016087
6 · The paper itself

Abstract

objectiveTo understand the informational needs during active surveillance (AS) for prostate cancer from the perspectives of patients and providers.

methodsWe conducted seven focus groups with 37 AS patients in two urban clinical settings, and 24 semi-structured interviews with a national sample of providers. Transcripts were analyzed using applied thematic analysis, and themes were organized using descriptive matrix analyses.

resultsWe identified six themes related to informational needs during AS: 1) more information on prostate cancer (biopsy features, prognosis), 2) more information on active surveillance (difference from watchful waiting, testing protocol), 3) more information on alternative management options (complementary medicine, lifestyle modification), 4) greater variety of resources (multiple formats, targeting different audiences), 5) more social support and interaction, and 6) verified integrity of information (trusted, multidisciplinary and secure).

conclusionsPatients and providers described numerous drawbacks to existing prostate cancer resources and a variety of unmet needs including information on prognosis, AS testing protocols, and lifestyle modification. They also expressed a need for different types of resources, including interaction and unbiased information. PRACTICAL IMPLICATIONS: These results are useful to inform the design of future resources for men undergoing AS.

Indexed as

Health Services Needs and DemandWatchful WaitingAgedFocus GroupsHumansMaleMiddle AgedProstatic NeoplasmsQualitative ResearchSocial SupportActive surveillanceDigital mediaInformational needsProstate cancerQualitative research

Identifiers

PMID28886974
PMCPMC5808852

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.