ArticlePloS one2017
Development and feasibility of Inlife: A pilot study of an online social support intervention for informal caregivers of people with dementia.
Article in PloS one, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04019301 (Caring for Caregivers With Mind-body Exercise), which is not on this map. Cited by 37 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Caring for Caregivers With Mind-body Exercise
Who cites it
37 citing papers in PubMed, 3 syntheses or guidelines pooled it, 91 citations in OpenAlex.
- The effect of personalized intelligent digital systems for self-care training on type II diabetes: a systematic review and meta-analysis of clinical trials.Acta diabetologica · 2023Pooled it
- Translating evidence to patient care through caregivers: a systematic review of caregiver-mediated interventions.BMC medicine · 2018Pooled it
- Internet-Based Interventions Aimed at Supporting Family Caregivers of People With Dementia: Systematic Review.Journal of medical Internet research · 2018Pooled it
- Trial
- Trial
- Application-Based Interventions for Family Caregivers of Older Adults: Scoping Review.JMIR aging · 2026Article
- Associations between social alienation, psychological resilience, perceived intergenerational communication, and perceived care-related autonomy among rural older adults in China.Frontiers in public health · 2026Article
- The CARING intervention for neuro-oncology family caregivers: Randomized controlled trial feasibility, eSNAP/caregiver navigation engagement, and acceptability.Neuro-oncology practice · 2025Article
- Web-Based Education Program for Care Partners of People Living With Dementia (iGeriCare): Protocol for a Pilot Randomized Controlled Trial.JMIR research protocols · 2025Article
- Participatory methods in designing digital health interventions for informal caregivers of people with dementia. A systematic review.Internet interventions · 2025Article
- Designing and Evaluating IT Applications for Informal Caregivers: Scoping Review.Journal of medical Internet research · 2024Article
- Unpaid carers of people with dementia and information communication technology: Use, impact and ideas for the future.Dementia (London, England) · 2024Article
- What works to support carers of older people and older carers? an international evidence map of interventions and outcomes.BMC geriatrics · 2024Review
- Design of a Dyadic Digital Health Module for Chronic Disease Shared Care: Development Study.JMIR human factors · 2023Article
- A mixed method study exploring gender differences in dementia caregiving.Dementia (London, England) · 2023Article
- Article
- Advance Care Planning Website for People With Dementia and Their Family Caregivers: Protocol for a Development and Usability Study.JMIR research protocols · 2023Article
- Article
- Supports and Interventions for Carers of a Person with Depressive or Anxiety Symptomology: A Systematic Review.Europe's journal of psychology · 2022Review
- Using Digital Media to Improve Dementia Care in India: Protocol for a Randomized Controlled Trial.JMIR research protocols · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundInformal caregivers of individuals with dementia have an increased risk to face social isolation due to progression of the disease. Online social media interventions might offer a new opportunity to increase access to social support and enhance positive interactions and openness in dementia care networks.
objectiveThis explorative pilot study describes (1) the development of an online social support intervention Inlife, and (2) the evaluation of the feasibility of this intervention and the measurements to assess its effectiveness.
methodsThe Medical Research Council (MRC) framework guided the development of the online social support intervention. This is a stepwise approach that integrates potential users' views with the development and validation of the program content. The program was developed by combining (1) individual caregiver interviews (n = 10), (2) focus group sessions with experts and web designers (n = 6), and (3) individual think-aloud tests (n = 2). Subsequently, a pilot study with informal caregivers was conducted (n = 25) to examine the program's feasibility and preliminary effectiveness. Online self-report measures were completed at baseline and at four follow-up time points.
resultsIn total, 23 participants completed the newly developed Inlife intervention. Despite the high number of low-active users (17/23, 73%), Inlife had a good feasibility score of 7.1 (range: 1-10). The Calendar and Timeline were used most frequently and contributed to better care coordination and positive interactions.
conclusionsAlthough the Inlife platform received a sufficient feasibility rating, the uptake was not optimal. Therefore, the Inlife platform was adapted to limit the number of low-active users and improve user friendliness. Recommendations for additional treatment adherence were provided. The development according to the MRC framework and the sufficient feasibility rating of Inlife formed the basis for a future effectiveness study.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.