Evidence map›Paper›PMID 28879629›Full record

Trial reportJournal of genetic counseling2018

Feasibility of Coping Effectiveness Training for Caregivers of Children with Autism Spectrum Disorder: a Genetic Counseling Intervention.

Christy Haakonsen Smith, Erin Turbitt, John Muschelli, Lori Leonard, Katie L Lewis, Brian Freedman, Michelle Muratori, Barbara B Biesecker

Abstract readRandomized Controlled Trial
PubMed Full text at PMC Publisher
In one paragraph

Trial report in Journal of genetic counseling, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Brief Interventions for Families Seeking Support from Family Services: A Scoping Review.International journal of environmental research and public health · 2025
    Article
  3. Article
  4. Article
  5. Article
  6. Genetic Counseling in Neurodevelopmental Disorders.Cold Spring Harbor perspectives in medicine · 2020
    Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Christy Haakonsen SmithSocial and Behavioral Research Branch, National Human Genome Research Institute, National Institutes Health, 31 Center Dr, MSC 2073, Building 31, Room B1B36, Bethesda, MD, 20892-2073, USA.
Erin TurbittSocial and Behavioral Research Branch, National Human Genome Research Institute, National Institutes Health, 31 Center Dr, MSC 2073, Building 31, Room B1B36, Bethesda, MD, 20892-2073, USA.ORCID 0000-0002-6650-9702
John MuschelliDepartent of Biostatistics, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA.
Lori LeonardDepartment of Development Sociology, Cornell University, Ithaca, NY, USA.
Katie L LewisMedical Genomics and Metabolic Genetics Branch, National Human Genome Research Institute, National Institutes Health, Bethesda, MD, USA.
Brian FreedmanCenter for Disabilities Studies, University of Delaware, Newark, DE, USA.
Michelle MuratoriJohns Hopkins Center for Talented Youth, Baltimore, MD, USA.
Barbara B BieseckerSocial and Behavioral Research Branch, National Human Genome Research Institute, National Institutes Health, 31 Center Dr, MSC 2073, Building 31, Room B1B36, Bethesda, MD, 20892-2073, USA. barbarab@mail.nih.gov.

Funding

NHGRI/DIR Genetic Counseling Training ProgramZIEHG200353 · NHGRI · NATIONAL HUMAN GENOME RESEARCH INSTITUTE · PI ERBY, LORI · 2010 to 2025
$16.9M
Interventions in Genetic CounselingZIAHG200317 · NHGRI · NATIONAL HUMAN GENOME RESEARCH INSTITUTE · PI BIESECKER, BARBARA BOWLES · 2009 to 2018
$7.6M
Intramural NIH HHS ZIE HG200353
6 · The paper itself

Abstract

Caregivers of children with autism spectrum disorder (ASD) may find it difficult to feel a sense of control and to cope with the overall physical and emotional demands of caring for their child. While caregivers are able to successfully cope with a high level of stress, there are limits to their resources and abilities to cope over time. Genetic counselors working with affected families may be able to help parents more effectively manage stress related to the disorder. Few short-term interventions have been reported in genetic counseling yet implementation of evidence-based examples may be achievable. This study aimed to assess the feasibility of a coping effectiveness training (CET) intervention designed to enhance coping self-efficacy (CSE) among caregivers of children with ASD, with the eventual goal of translating this intervention into genetic counseling practice. A randomized treatment-control design was used to investigate the feasibility of an intervention using CET among caregivers of children with ASD. The primary outcome was the feasibility of the intervention; the secondary outcome was improvements in CSE in the intervention group as compared to the control group. Caregivers were recruited and randomized into the treatment (n=15) or control (n=13) groups. Of these, 22 completed the study (retention: 78.6%). The intervention was highly feasible; most caregivers found the CET helpful, practical, useful, and relatively easy to attend. The treatment group demonstrated significantly increased CSE from pre-intervention to post-intervention (p=0.02). Between group differences were not significant when comparing the pre-post changes. We provide preliminary evidence that CET may be beneficial to caregivers of children with ASD. The results of this feasibility study support development of a phase II study of this intervention in a larger cohort, aimed to be implemented into a genetic counseling setting.

Indexed as

Adaptation, PsychologicalAdultAutism Spectrum DisorderCaregiversChildChild, PreschoolCohort StudiesFeasibility StudiesFemaleGenetic CounselingHumansMaleParentsSelf EfficacySocial SupportAdaptationAutism spectrum disorderCaregiverCoping skillsParent

Identifiers

PMID28879629
PMCPMC7350656

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.