ArticleJDR clinical and translational research2017
Care Pathways in Persistent Orofacial Pain: Qualitative Evidence from the DEEP Study.
Article in JDR clinical and translational research, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers, 4 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
23 citing papers in PubMed, 4 syntheses or guidelines pooled it, 42 citations in OpenAlex.
- Advanced, pharmacological and complementary interventions for chronic or recurrent orofacial pain conditions: a systematic evidence map with selective meta-analyses.The journal of headache and pain · 2026Pooled it
- A patient journey map based on the experience of temporomandibular disorders patients: a qualitative systematic review and meta-synthesis.Frontiers in public health · 2026Pooled it
- Experiences of pain communication in endometriosis: A meta-synthesis.Acta obstetricia et gynecologica Scandinavica · 2025Pooled it
- A Meta-Synthesis of the Experience of Chronic Temporomandibular Disorder Patients Within Health Care ServicesJournal of oral & facial pain and headache · 2023Pooled it
- Navigating Health Care with Concurrent Jaw and Neck Pain: A Patient-Centered Perspective.JDR clinical and translational research · 2026Article
- Interprofessional collaboration for the management of orofacial pain: a delphi study in the Netherlands.BMC oral health · 2026Article
- Dental Students' Temporomandibular Disorder-Related Education, Knowledge, Attitudes, and Behavior, How Do Personal Experiences Matter?Journal of dental education · 2026Article
- Knowledge and Clinical Approaches to Temporomandibular Disorders in Primary Healthcare: A Cross-Sectional Comparative Study of Physicians and Dentists in Croatia.Clinics and practice · 2026Article
- First-contact access from the perspective of users of primary health care: an evaluation in family and oral health teams.Einstein (Sao Paulo, Brazil) · 2026Article
- Contributing factors for a satisfying orofacial pain patient journey: a mixed-methods study.Journal of oral & facial pain and headache · 2025Article
- Neuroimaging Signatures of Temporomandibular Disorder and Burning Mouth Syndrome: A Systematic Review.Dentistry journal · 2025Review
- Social Determinants and Consequences of Pain: Toward Multilevel, Intersectional, and Life Course Perspectives.The journal of pain · 2024Review
- Evaluating the Influence of Acute and Chronic Orofacial Pains on the Overall Comprehensive Quality of Life.Cureus · 2024Article
- Chronic temporomandibular disorder pain patients with a history of neuropathic pain treatment: a narrative research on their diagnosis and treatment history.BMC oral health · 2024Article
- Persistent Orofacial Pain Attendances at General Medical Practitioners.Journal of dental research · 2023Observational
- Building the foundation for a modern patient-partnered infrastructure to study temporomandibular disorders.Frontiers in digital health · 2023Article
- "No One Truly Understands What We Go through and How to Treat It": Lived Experiences with Medical Providers among Patients with Orofacial Pain.International journal of environmental research and public health · 2022Article
- Effectiveness of and Patient's Satisfaction with Dental Emergency Unit in Pitié Salpêtrière Hospital (Paris), Focusing on Pain and Anxiety.International journal of dentistry · 2022Article
- DEEP Study: Modeling Outcomes and Costs of Persistent Orofacial Pain.JDR clinical and translational research · 2021Article
- Temporomandibular disorders.BJA education · 2021Review
Corrections and comments
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Authors and funding
5 authors at 1 institution in 1 country.
Funding
Abstract
Persistent orofacial pain is relatively common and known to have an adverse effect on quality of life. Previous studies suggest that the current care pathway may be problematic, but it is not well understood which health services patients access and what their experience is. The aim of this study was to explore care pathways and their impact from the perspective of patients. Qualitative interviews were conducted with a maximum variation sample of patients recruited from primary (community based) and secondary (specialist hospital based) care in the United Kingdom. Questions focused on the stages in their pathway and the impact of the care that they had received. Interviews were digitally recorded and transcribed verbatim, and analysis followed principles of the constant comparative method. NVivo 10 was used to help organize and analyze data. Twenty-two patients were interviewed at baseline, and 18 took part in a second interview at 12 mo. Three main themes emerged from the data: the "fluidity of the care pathway," in which patients described moving among health care providers in attempts to have their pain diagnosed and managed, occurring alongside a "failure to progress," where despite multiple appointments, patients described frustration at delays in obtaining a diagnosis and effective treatment for their pain. Throughout their care pathways, patients described the "effects of unmanaged pain," where the longer the pain went unmanaged, the greater its potential to negatively affect their lives. Findings of this study suggest that the current care pathway is inefficient and fails to meet patient needs. Future work needs to focus on working with stakeholder groups to redesign patient-centered care pathways.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.