ArticleInternational journal of qualitative studies on health and well-being2017
The experience of being a participant in one's own care at discharge and at home, following a severe acute exacerbation in chronic obstructive pulmonary disease: a longitudinal study.
Article in International journal of qualitative studies on health and well-being, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers, 1 of them a synthesis that pooled it.
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Who cites it
9 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Qualitative systematic review of barriers and facilitators to self-management of chronic obstructive pulmonary disease: views of patients and healthcare professionals.NPJ primary care respiratory medicine · 2018Pooled it
- Patients' and healthcare personnel's experiences of a health-literacy intervention in chronic obstructive pulmonary disease - a qualitative study.BMC health services research · 2025Trial
- The impact of a personalised action plan delivered at discharge to patients with COPD on readmissions: a pilot study.Scandinavian journal of caring sciences · 2020Trial
- Barriers and enablers to medicine-taking behaviours in chronic obstructive pulmonary disease: a qualitative interview study.International journal of clinical pharmacy · 2025Article
- An Intersectional Perspective on Digital Health: Longitudinal Narratives and Observations With Older and Middle-Aged Women Experiencing Homelessness.The Gerontologist · 2025Article
- Feasibility of a wearable self-management application for patients with COPD at home: a pilot study.BMC medical informatics and decision making · 2024Observational
- Supporting Behavior Change After AECOPD - Development of a Hospital-Initiated Intervention Using the Behavior Change Wheel.International journal of chronic obstructive pulmonary disease · 2022Article
- Advanced nursing practice in COPD exacerbations: the solution for a gap in Switzerland?ERJ open research · 2020Article
- A Ricoeur-Inspired Approach to Interpret Participant Observations and Interviews.Global qualitative nursing researchArticle
Corrections and comments
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeIn healthcare related to hospital discharge and follow-up, it is acknowledged that patient participation can strengthen self-management in patients with chronic obstructive pulmonary disease. However, the meaning of participation in care following a severe acute exacerbation is less described. Therefore, the aim of this part of a larger study was to explore patients' experiences of participating in their care around discharge and in their subsequent day-to-day care at home.
methodThe study was designed as a qualitative, longitudinal study. Data were collected by repeated participant observations and in-depth interviews with 15 patients within a period of 18 months post-discharge. A phenomenological-hermeneutic approach was used to interpret the data.
resultsBefore discharge, the patients struggled to regain a sense of control in their efforts to build up strength, and acquire sufficient clarity and confidence to face self-management at home. At home, the patients strived to comply with advice and encouragement in a struggle to stay motivated and confident, and to ask for help.
conclusionsWith more knowledge about patients' participation in care, healthcare professionals can encounter patients in ways that are sensitive to their specific care and support needs and, thereby, contribute to the promotion of patients' health and well-being.
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