ArticleThe American journal of hospice & palliative care2018
Pain Management Concerns From the Hospice Family Caregivers' Perspective.
Article in The American journal of hospice & palliative care, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers, 3 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
19 citing papers in PubMed, 3 syntheses or guidelines pooled it, 46 citations in OpenAlex.
- Family Caregiver Challenges in Pain Management for Patients with Advanced Illnesses: A Systematic Review.Journal of palliative medicine · 2022Pooled it
- Interventions to Support Family Caregivers in Pain Management: A Systematic Review.Journal of pain and symptom management · 2020Pooled it
- A mixed-methods systematic review and meta-analysis of barriers and facilitators to paediatric symptom management at end of life.Palliative medicine · 2020Pooled it
- Factors influencing engagement in an online support group for family caregivers of individuals with advanced cancer.Journal of psychosocial oncologyTrial
- Palliative Home Care Based on Clinically Relevant Scientific Measures: A Cross-Sectional Study.The American journal of hospice & palliative care · 2025Article
- Pain Management Education for Rural Hospice Family Caregivers: A Pilot Study With Embedded Implementation Evaluation.The American journal of hospice & palliative care · 2024Article
- Close but Not Close Enough: How Distance Caregiving is Associated with Hospice Family Caregiver Hospice Communication Experiences.Health communication · 2024Article
- Adapting an Intervention to Address Barriers to Pain Management in Hospice: Formative Research to Inform EMPOWER-D for Dementia Caregivers.Palliative medicine reports · 2024Article
- Symptom Management Experience of End-of-Life Family Caregivers: A Population-Based Study.Journal of pain and symptom management · 2022Article
- Article
- The Value Proposition of Observation Medicine in Managing Acute Oncologic Pain.Current oncology reports · 2022Review
- Caregiver-provider communication about pain in persons with dementia.Dementia (London, England) · 2022Article
- Comparison of Traditional Videos With Telenovelas for Hospice Family Caregivers Education.The American journal of hospice & palliative care · 2021Article
- Associations Between Hospice Care and Scary Family Caregiver Experiences.Journal of pain and symptom management · 2021Article
- Understanding the Experience of Cancer Pain From the Perspective of Patients and Family Caregivers to Inform Design of an In-Home Smart Health System: Multimethod Approach.JMIR formative research · 2020Article
- Leveraging Smart Health Technology to Empower Patients and Family Caregivers in Managing Cancer Pain: Protocol for a Feasibility Study.JMIR research protocols · 2019Article
- Nurses' Perspectives on Family Caregiver Medication Management Support and Deprescribing.Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association · 2019Article
- Development and Preliminary Evaluation of a Pain Management Manual for Hospice Providers to Support and Educate Family Caregivers.The American journal of hospice & palliative care · 2019Article
- Communicating Caregivers' Challenges With Cancer Pain Management: An Analysis of Home Hospice Visits.Journal of pain and symptom management · 2018Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 3 institutions in 1 country.
Funding
Abstract
backgroundPain management is a challenging task for family caregivers in home hospice care. However, there are limited studies that examine the challenges regarding pain management in hospice care from family caregivers' perspectives.
objectivesTo identify the challenges related to pain management faced by family caregivers in hospice care and to examine the validity of an existing framework that outlines pain management challenges for hospice family caregivers.
designWe conducted a theory-driven, deductive content analysis of secondary data obtained from hospice family caregivers' interviews from a randomized clinical trial. SETTING/
participantsWe included baseline interviews of 15 hospice caregivers of patients from hospice agencies in the States of Washington. The majority of the participants were white and female caregivers. They were spouse/partner or adult child living with the patient.
resultsThe study identified 5 out of the 6 major themes in the original framework and confirmed that hospice family caregivers face a variety of challenges: caregiver-centric issues, caregiver's medication skills and knowledge, communication and teamwork, organizational skill, and patient-centric issues. A couple of the subthemes in the original framework were not present in our findings. We also expanded the original framework by adding 1 subtheme and revised 2 definitions in the original framework.
conclusionThe study provided an investigation on hospice family caregivers' difficulties in pain management. The results can inform health-care providers and researchers of family caregivers' challenges and provide insights for future designs of educational tools targeting pain management strategies, so that family caregivers can perform pain management effectively at home.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.