ArticleBMC palliative care2017
Can digital stories go where palliative care research has never gone before? A descriptive qualitative study exploring the application of an emerging public health research method in an indigenous palliative care context.
Article in BMC palliative care, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers, 1 of them a synthesis that pooled it.
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Who cites it
9 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Digital Storytelling in Older Adults With Typical Aging, and With Mild Cognitive Impairment or Dementia: A Systematic Literature Review.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2022Pooled it
- Palliative care training for healthcare professionals in ethnic minority regions of China: a qualitative study of training needs, barriers and practice translation.BMC palliative care · 2026Article
- Digital Narrative Medicine: Translating Stories Into Medical Education and Better Patient Care.Journal of medical Internet research · 2026Article
- Co-creation methods for public health research - characteristics, benefits, and challenges: a Health CASCADE scoping review.BMC medical research methodology · 2025Article
- The role of patients' stories in medicine: a systematic scoping review.BMC palliative care · 2023Article
- Creating 'safe spaces': A qualitative study to explore enablers and barriers to culturally safe end-of-life care.Palliative medicine · 2023Article
- Reflecting on choices and responsibility in palliative care in the context of social disadvantage.Palliative care and social practice · 2023Review
- Improving continence management for people with dementia in the community in Aotearoa, New Zealand: Protocol for a mixed methods study.PloS one · 2023Article
- Digital Storytelling as a Patient Engagement and Research Approach With First Nations Women: How the Medicine Wheel Guided Our Debwewin Journey.Qualitative health research · 2021Article
Corrections and comments
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Authors and funding
9 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe World Health Organization (WHO) has called for global approaches to palliative care development. Yet it is questionable whether one-size-fits-all solutions can accommodate international disparities in palliative care need. More flexible research methods are called for in order to understand diverse priorities at local levels. This is especially imperative for Indigenous populations and other groups underrepresented in the palliative care evidence-base. Digital storytelling (DST) offers the potential to be one such method. Digital stories are short first-person videos that tell a story of great significance to the creator. The method has already found a place within public health research and has been described as a useful, emergent method for community-based participatory research.
methodsThe aim of this study was to explore Māori participants' views on DST's usefulness, from an Indigenous perspective, as a research method within the discipline of palliative care. The digital storytelling method was adapted to include Māori cultural protocols. Data capturing participant experience of the study were collected using participant observation and anonymous questionnaires. Eight participants, seven women and one man, took part. Field notes and questionnaire data were analysed using critical thematic analysis.
resultsTwo main themes were identified during analyses: 1) issues that facilitated digital storytelling's usefulness as a research method for Māori reporting on end of life caregiving; and 2) issues that hindered this process. All subthemes identified: recruitment, the pōwhiri process, (Māori formal welcome of visitors) and technology, related to both main themes and are presented in this way.
conclusionDigital storytelling is an emerging method useful for exploring Indigenous palliative care issues. In line with a Health Promoting Palliative Care approach that centres research in communities, it helps meet the need for diverse approaches to involve underrepresented groups.
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