ArticleFrontiers in neurology2017
The Experience of Essential Tremor Caregivers: Burden and Its Correlates.
Article in Frontiers in neurology, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 1 of them a synthesis that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
21 citing papers in PubMed, 1 synthesis or guideline pooled it, 34 citations in OpenAlex.
- Essential tremor patients experience significant burden beyond tremor: A systematic literature review.Frontiers in neurology · 2022Pooled it
- Comparative Effectiveness of Transcutaneous Afferent Patterned Stimulation Therapy for Essential Tremor: A Randomized Pragmatic Clinical Trial.Tremor and other hyperkinetic movements (New York, N.Y.) · 2023Trial
- Prospective Home-use Study on Non-invasive Neuromodulation Therapy for Essential Tremor.Tremor and other hyperkinetic movements (New York, N.Y.) · 2020Trial
- Association Between Tremor Severity and Caregiving Intensity in Essential Tremor.Tremor and other hyperkinetic movements (New York, N.Y.) · 2025Article
- Changes in Caregiver Burden Following Unilateral Magnetic Resonance-Guided Focused Ultrasound Thalamotomy for Essential Tremor.Movement disorders clinical practice · 2024Article
- Associations Among Tremor Amplitude, Activities of Daily Living, and Quality of Life in Patients with Essential Tremor.Tremor and other hyperkinetic movements (New York, N.Y.) · 2024Article
- Impact of tardive dyskinesia on patients and caregivers: a survey of caregivers in the United States.Journal of patient-reported outcomes · 2023Article
- Can the Montreal Cognitive Assessment and Mini-Mental State Examination detect cognitive decline in elderly patients with essential tremor?The Clinical neuropsychologist · 2023Article
- Comparison Between Burden of Care Partners of Individuals with Alzheimer's Disease Versus Individuals with Other Chronic Diseases.Neurology and therapy · 2023Review
- Developing a Staging Scheme for Essential Tremor: A Discussion of Organizing Principles.Tremor and other hyperkinetic movements (New York, N.Y.) · 2023Article
- Brain Donation Decisions as Disease Specific Behaviors: An Elucidation of the Donation Process in the Context of Essential Tremor.Tremor and other hyperkinetic movements (New York, N.Y.) · 2022Article
- Time trends in the incidence of essential tremor: Evidences from UK and France primary care data.Frontiers in neurology · 2022Article
- Mild cognitive impairment, dementia and risk of mortality in essential tremor: A longitudinal prospective study of elders.Journal of the neurological sciences · 2021Article
- Rate of progression from mild cognitive impairment to dementia in an essential tremor cohort: A prospective, longitudinal study.Parkinsonism & related disorders · 2020Article
- Psychological Burden of Hepatic Encephalopathy on Patients and Caregivers.Clinical and translational gastroenterology · 2020Observational
- The "Caring Giver": Emotional Caregiving in the Setting of Essential Tremor.Research on aging · 2020Article
- Enfeeblement in Essential Tremor: Development and Validation of a New Psychometric Measure.Journal of geriatric psychiatry and neurology · 2019Article
- Enfeeblement in Elders with Essential Tremor: Characterizing the Phenomenon and Its Role in Caregiver Burden.Tremor and other hyperkinetic movements (New York, N.Y.) · 2019Article
- Perceived embarrassment and caregiver burden in essential tremor caregivers.Journal of the neurological sciences · 2017Article
- Psychological Suffering in Essential Tremor: A Study of Patients and Those Who Are Close to Them.Tremor and other hyperkinetic movements (New York, N.Y.) · 2017Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
10 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundEssential tremor (ET) is associated with physical and cognitive impairments, as well as embarrassment, avoidance of social settings, and related difficulties that negatively impact the lives of patients. In similar disease contexts, burden on friends and relatives acting as caregivers has been noted and has well-documented implications. There has been no study examining caregiver burden related to ET.
methodsData were gathered from 55 ET participants enrolled in a clinical study and their caregivers. The Zarit Burden Interview was used to assess caregiver burden. To assess clinical features that may be associated with burden, we collected several variables including the Montreal Cognitive Assessment, self-reported tremor disability, a videotaped neurological examination, questionnaires assessing ET participants' suffering, caregivers' perceptions of that suffering, and both caregiver and ET participant depressive symptoms. Spearman's correlations were performed between caregiver burden and clinical features, and we created a multivariate linear regression model predicting caregiver burden.
resultsMany ET caregivers provide little to no care and experience little to no burden. However, some caregivers (11%) provide over 25 h of care/week, and 13% experience high levels of burden. Caregivers most commonly provided assistance with writing and cooking. Increased burden was associated with the ET participants' decreased cognition, more caregiving tasks, more hours/week of caregiving activities, a longer duration of care, more ET participant falls/year, more medications taken by the ET participant, and more depressive symptoms in both the ET participant and the caregiver (all
conclusionWhile not all relatives and friends of ET patients provide extensive care or experience high burden, there is a group reporting high levels of caregiver burden that requires the attention and counseling of clinicians. This burden is associated with primarily non-tremor symptoms of ET and with caregivers' perception that their partners are suffering.
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