ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2018
Caregiving and mutuality among long-term colorectal cancer survivors with ostomies: qualitative study.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 1 of them a synthesis that pooled it.
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Who cites it
14 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Interventions targeting quality of life in patients with colorectal cancer and a fecal ostomy: A systematic review.Journal of gastrointestinal surgery : official journal of the Society for Surgery of the Alimentary Tract · 2026Pooled it
- Caregiving Experiences, Supportive Care Needs and Coping Strategies Among Family Caregivers of Patients with Colorectal Cancer in Kazakhstan: A Qualitative Descriptive Study.Nursing reports (Pavia, Italy) · 2026Article
- Perioperative Ostomy Care and Education Experiences by Patient and Caregiver Health Literacy.The Journal of surgical research · 2026Article
- Couples' experiences with ostomy due to colorectal cancer in one of the partners: a scoping review.Revista da Escola de Enfermagem da U S P · 2026Article
- The impact of ostomy on colorectal cancer patients and caregivers: a qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Defining Opportunities to Improve Perioperative Ostomy Care and Education.Annals of surgery open : perspectives of surgical history, education, and clinical approaches · 2025Article
- The effect of recovery status and life conditions on the quality of life in colorectal cancer patients with stoma: a path analysis.Frontiers in psychology · 2025Article
- Experiences of mutuality between Chinese lung cancer patients and family caregivers during chemotherapy: a qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- Article
- A qualitative study about colorectal cancer patients and spousal caregivers' experience and needs during COVID-19: implications for self-efficacy intervention.Asia-Pacific journal of oncology nursing · 2023Article
- Experiences and Perceptions in Dyads about Ostomy Care. Meta-synthesis of Qualitative Studies.Investigacion y educacion en enfermeria · 2022Article
- Family-Centered Interventions and Quality of Life of Clients with Ostomy.Nursing research and practice · 2022Article
- Patient-reported outcomes and experiences from the perspective of colorectal cancer survivors: meta-synthesis of qualitative studies.Journal of patient-reported outcomes · 2020Article
- Enhancing the cancer caregiving experience: Building resilience through role adjustment and mutuality.European journal of oncology nursing : the official journal of European Oncology Nursing Society · 2019Article
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Authors and funding
6 authors.
Funding
Abstract
purposeThe cancer caregiving literature focuses on the early phases of survivorship, but caregiving can continue for decades when cancer creates disability. Survivors with an ostomy following colorectal cancer (CRC) have caregiving needs that may last decades. Mutuality has been identified as a relationship component that can affect caregiving. This paper discusses how mutuality may affect long-term ostomy caregiving.
methodsWe conducted semi-structured, in-depth interviews with 31 long-term CRC survivors with ostomies and their primary informal caregivers. Interviewees were members of an integrated health care delivery system in the USA. We used inductive theme analysis techniques to analyze the interviews.
resultsMost survivors were 71 years of age or older (67%), female (55%), and with some college education (54%). Two thirds lived with and received care from spouses. Caregiving ranged from minimal support to intimate assistance with daily ostomy care. While some survivors received caregiving far beyond what was needed, others did not receive adequate caregiving for their health care needs. Low mutuality created challenges for ostomy caregiving.
conclusionsMutuality impacts the quality of caregiving, and this quality may change over time, depending on various factors. Emotional feedback and amplification is the proposed mechanism by which mutuality may shift over time. Survivorship care should include assessment and support of mutuality as a resource to enhance health outcomes and quality of life for survivors with long-term caregiving needs and their caregivers. Appropriate questionnaires can be identified or developed to assess mutuality over the survivorship trajectory.
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