ArticleHealth expectations : an international journal of public participation in health care and health policy2018
Carers' involvement in decision making about antipsychotic medication: A qualitative study.
Article in Health expectations : an international journal of public participation in health care and health policy, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.
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Who cites it
9 citing papers in PubMed.
- A cross-cultural study of the experience of family members caring for persons with schizophrenia in Australia and India.Social psychiatry and psychiatric epidemiology · 2026Article
- Shared decision-making for patients with psychotic disorders: validating the measure "collaboRATE for Next of Kin acting to support patient autonomy".Frontiers in health services · 2026Article
- Triadic Perspectives on Decision Making in Psychiatry: A Qualitative Study on Service Users, Caregivers and Healthcare Professionals in Latvia.Healthcare (Basel, Switzerland) · 2025Article
- Challenges and coping strategies when caring for terminally ill persons with cancer: perspectives of family caregivers.BMC palliative care · 2024Article
- Exploring mental health clients' current medication knowledge, beliefs and experience with healthcare providers in the community in South Australia.Health & social care in the community · 2022Article
- Perceptions of Family Caregivers of Patients with Schizophrenia Towards Antipsychotics Associated Side-Effects in China:A Qualitative Study.Patient preference and adherence · 2022Article
- 'Triadic' shared decision making in mental health: Experiences and expectations of service users, caregivers and clinicians in Germany.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- Article
- Carers' involvement in decision making about antipsychotic medication: A qualitative study.Health expectations : an international journal of public participation in health care and health policy · 2018Article
Corrections and comments
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Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundCurrent Australian mental health policy recommends that carers should be involved in the provision of mental health services. Carers often provide intensive support to mental health consumers and gain detailed insight into their lives. As such, carers could make valuable contributions to well-informed decisions about mental health consumers' use of antipsychotic medication.
objectivesThe aim of this study was to explore carers' participation in antipsychotic medication decision making.
methodsSnowball sampling was used to enrol 29 carers in this study. Of these carers, 19 participated in semi-structured interviews, and ten participated in a focus group. Data were analysed thematically.
resultsFour main themes emerged from the analysis. The findings highlighted that carers typically received little or no information about antipsychotic medication. Carers commonly addressed the shortfall in information by obtaining additional information through online sources or distributing among carer networks material that they had developed themselves. Almost all carers emphasized that they should be involved in decisions about antipsychotic medication, but noted that they were typically excluded. The lack of involvement in medication decisions was a source of frustration, as carers could contribute saliently through sharing detailed knowledge about mental health consumers' lives, address communication gaps that resulted from disjointed care and improve communication between health professionals and mental health consumers.
conclusionHealth professionals could consider improving the extent to which they collaborate with carers in medication decisions.
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