ArticleFrontline gastroenterology2017
A qualitative study of the impact of Crohn's disease from a patient's perspective.
Article in Frontline gastroenterology, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
19 citing papers in PubMed, 35 citations in OpenAlex.
- Association between life satisfaction and selected socio-demographic factors and social and professional activity - a comparative study between patients with Crohn's disease and patients with ulcerative colitis.Przeglad gastroenterologiczny · 2026Article
- Psychological well-being and quality of life in pediatric patients with inflammatory bowel disease in clinical remission.JPGN reports · 2025Article
- Observing the Influence of Shame and Guilt in Inflammatory Bowel Disease: A Systematic Review.Clinical neuropsychiatry · 2025Review
- The Crohn's Disease Exclusion Diet: A Comprehensive Review of Evidence, Implementation Strategies, Practical Guidance, and Future Directions.Inflammatory bowel diseases · 2024Review
- The Interaction between Stress and Inflammatory Bowel Disease in Pediatric and Adult Patients.Journal of clinical medicine · 2024Review
- Identification of the informational and supportive needs of patients diagnosed with inflammatory bowel disease: a scoping review.Frontiers in psychology · 2023Article
- Factors Associated With Social Participation in Persons Living With Inflammatory Bowel Disease.Journal of the Canadian Association of Gastroenterology · 2022Article
- A Feeling of Otherness: A Qualitative Research Synthesis Exploring the Lived Experiences of Stigma in Individuals with Inflammatory Bowel Disease.International journal of environmental research and public health · 2021Review
- Factors Associated with Poor Quality of Life in a Canadian Cohort of Patients with Inflammatory Bowel Disease: A Cross-sectional Study.Journal of the Canadian Association of Gastroenterology · 2021Article
- The National Pharmaceutical Council: Endorsing the Construction of Imaginary Worlds in Health Technology Assessment.Pharmacy (Basel, Switzerland) · 2020Article
- Patient's Perspective on Disease Burden, Remission Definition, and Symptoms Associated With Treatment Seeking: A Qualitative Study in Adult and Adolescent Patients With Crohn's Disease.Crohn's & colitis 360 · 2020Article
- Gastrointestinal Symptoms of and Psychosocial Changes in Inflammatory Bowel Disease: A Nursing-Led Cross-Sectional Study of Patients in Clinical Remission.Medicina (Kaunas, Lithuania) · 2020Article
- The Great I-QALY Disaster.Innovations in pharmacy · 2020Article
- The Impact of Inflammatory Bowel Disease in Canada 2018: Quality of Life.Journal of the Canadian Association of Gastroenterology · 2019Article
- Disutility Study for Adult Patients with Moderate to Severe Crohn's Disease.Journal of health economics and outcomes research · 2019Article
- Cognitive-behavioural therapy for the management of inflammatory bowel disease-fatigue: a feasibility randomised controlled trial.Pilot and feasibility studies · 2019Article
- A qualitative study of the impact of plexiform neurofibromas on need fulfilment in adults with neurofibromatosis type 1.SAGE open medicine · 2019Article
- Impact on Health-Related Quality of Life in Adults with Eosinophilic Gastritis and Gastroenteritis: A Qualitative Assessment.Digestive diseases and sciences · 2018Article
- Dietary Perceptions among Patients with Crohn's Disease in Clinical Remission: Comparison with an Era Preceding the Availability of Biologic Therapy.Inflammatory intestinal diseasesArticle
Corrections and comments
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Authors and funding
4 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveTo understand how the lives of people with Crohn's disease (CD) are affected. Most research in CD has focused on symptoms and functioning rather than on how these outcomes influence quality of life (QoL).
designAs part of a study to develop a CD-specific patient-reported outcome measure, qualitative interviews were conducted with patients from Manchester Royal Infirmary to determine how CD affects QoL. The needs-based model was adopted for the study. The interviews, which took the form of focused conversations covering all aspects of the impact of CD and its treatment, were audio-recorded. Theoretical thematic analysis of the transcripts identified needs affected by CD.
resultsThirty patients (60% female) aged 25-68 years were interviewed. Participants had experienced CD for between 2 and 40 years. Nearly 1300 statements relating to the impact of CD were identified. Thirteen main need themes were identified: nutrition, hygiene, continence, freedom from infection, security, self-esteem, role, attractiveness, relationships, intimacy, clear-mindedness, pleasure and autonomy.
conclusionsThe findings from the interviews indicate that CD has a major impact on need-fulfilment. Such issues should be addressed in CD audit, clinical trials and when evaluating clinical practice.
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