ArticleBMJ open2017
Living with chronic migraine: a qualitative study on female patients' perspectives from a specialised headache clinic in Spain.
Article in BMJ open, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 1 of them a synthesis that pooled it.
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Who cites it
21 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Living with migraine: A meta-synthesis of qualitative studies.Frontiers in psychology · 2023Pooled it
- Does pain self-efficacy predict, moderate or mediate outcomes in people with chronic headache; an exploratory analysis of the CHESS trial.The journal of headache and pain · 2024Trial
- Chronic Headache Education and Self-Management Study (CHESS): a process evaluation.BMC neurology · 2023Trial
- The Migraine Care Gap: A Qualitative Analysis of Patients' Perspectives on Medical Progress and Persistent Unmet Needs.Pain and therapy · 2026Article
- Adapting to life with chronic migraine: a qualitative study of lived experiences among multi-ethnic Asian patients.Frontiers in pain research (Lausanne, Switzerland) · 2026Article
- The Social Life of Migraine: A Meta-Ethnography of Lived Experience in Adults With Migraine.Health services insights · 2026Review
- Quickest way to less headache days: an operational research model and its implementation for chronic migraine.BMC neurology · 2025Article
- "It's just part of who I am…" Living with chronic headache: voices from the CHESS trial, a qualitative study.BMC neurology · 2024Article
- Real-world experience of OnabotulinumtoxinA treatment in female patients with chronic migraine: a qualitative study using in-depth interviews.Annals of medicine · 2023Article
- The psychosocial impact of migraines on women and alternative therapies for migraine management.Health SA = SA Gesondheid · 2023Article
- Complex Patient Navigation by Veteran Patients in the Veterans Health Administration (VHA) for Chronic Headache Disease: A Qualitative Study.Journal of patient experience · 2023Article
- Measuring interictal burden among people affected by migraine: a descriptive survey study.The journal of headache and pain · 2022Article
- Real-World experience of interictal burden and treatment in migraine: a qualitative interview study.The journal of headache and pain · 2022Article
- A Qualitative Study to Explore Patient Perspectives of Prophylactic Treatment with OnabotulinumtoxinA for Chronic Migraine.Pain and therapy · 2021Article
- Towards eHealth to support the health journey of headache patients: a scoping review.Journal of neurology · 2021Article
- Understanding the diagnoses and medical care experience of patients with new daily persistent headache: a qualitative study in Spain.BMJ open · 2021Article
- Burden of migraine and unmet needs from the patients' perspective: a survey across 11 specialized headache clinics in Korea.The journal of headache and pain · 2021Article
- Coping and Motivation for Change-An Interview Study of the Experience From Participation in an Educational Program for Patients With Medication-Overuse Headache.Journal of patient experience · 2021Article
- Clinical Reasoning Behind Non-Pharmacological Interventions for the Management of Headaches: A Narrative Literature Review.International journal of environmental research and public health · 2020Review
- Effects of onabotulinumtoxinA treatment in chronic migraine patients with and without daily headache at baseline: results from the COMPEL Study.The journal of headache and pain · 2019Article
Corrections and comments
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Authors and funding
9 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesThe aim of this study was to explore the views and experiences of a group of Spanish women suffering from chronic migraine (CM).
settingHeadache clinic at a university hospital in Madrid (Spain).
participantsPurposeful sampling of patients that attended a specialised headache clinic for the first time between June 2016 and February 2017 was performed. The patients included were females aged 18-65 and with positive diagnoses of CM according to the International Classification of Headache disorders (third edition, beta version), with or without medication overuse. Accordingly, 20 patients participated in the study with a mean age of 38.65 years (SD 13.85).
designQualitative phenomenological study.
methodsData were collected through in-depth interviews, researchers' field notes and patients' drawings. A thematic analysis was performed following appropriate guidelines for qualitative research.
resultsFive main themes describing the significance of suffering emerged: (a) the shame of suffering from an invisible condition; (b) treatment: between need, scepticism and fear; (c) looking for physicians' support and sincerity and fighting misconceptions; (d) limiting the impact on daily life through self-control; and (e) family and work: between understanding and disbelief. The disease is experienced as an invisible process, and the journey to diagnosis can be a long and tortuous one. Drug prescription by the physician is greeted with distrust and scepticism. Patients expect sincerity, support and the involvement of their doctors in relation to their disease. Pain becomes the main focus of the patient's life, and it requires considerable self-control. The disease has a strong impact in the work and family environment, where the patient may feel misunderstood.
conclusionsQualitative research offers insight into the way patients with CM experience their disease and it may be helpful in establishing a more fruitful relationship with these patients.
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