ArticleBMJ open2017
Adapting to ulcerative colitis to try to live a 'normal' life: a qualitative study of patients' experiences in the Midlands region of England.
Article in BMJ open, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.
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Who cites it
12 citing papers in PubMed, 19 citations in OpenAlex.
- Patient views about the impact of ulcerative colitis and its management with drug treatment and surgery: a nested qualitative study within the CONSTRUCT trial.BMC gastroenterology · 2019Trial
- A Qualitative Study Exploring Psychosocial Care in Inflammatory Bowel Disease: Lessons from Aotearoa New Zealand.International journal of behavioral medicine · 2026Article
- Lifestyle restrictions are associated with impaired quality of life but not reduction in relapse in ulcerative colitis.Intestinal research · 2026Article
- Key considerations for digital decentralised clinical trials from a feasibility study assessing pacing interventions for long COVID.Scientific reports · 2024Article
- Qualitative Research and Applications in Colorectal Surgery.Clinics in colon and rectal surgery · 2023Review
- Patient preferences and current practice for adults with steroid-resistant ulcerative colitis: POPSTER mixed-methods study.Health technology assessment (Winchester, England) · 2022Article
- Evidence-based pathogenesis and treatment of ulcerative colitis: A causal role for colonic epithelial hydrogen peroxide.World journal of gastroenterology · 2022Review
- Notable gaps between patients' and physicians' perspectives on communication and disease management in Japan: multifacetedTherapeutic advances in gastroenterology · 2022Article
- Ulcerative Colitis Narrative Global Survey Findings: The Impact of Living With Ulcerative Colitis-Patients' and Physicians' View.Inflammatory bowel diseases · 2021Article
- Patients' accounts of living with and managing inflammatory bowel disease in rural Southern New Zealand: a qualitative study.BMJ open · 2020Article
- Patient and clinician opinions of patient reported outcome measures (PROMs) in the management of patients with rare diseases: a qualitative study.Health and quality of life outcomes · 2020Article
- Ulcerative Colitis: Disease Burden, Impact on Daily Life, and Reluctance to Consult Medical Professionals: Results from a Japanese Internet Survey.Inflammatory intestinal diseases · 2020Article
Corrections and comments
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Authors and funding
8 authors at 2 institutions in 1 country.
Funding
Abstract
objectiveTo provide a framework that is able to categorise whether patients are able to adapt to and lead a 'normal' life with ulcerative colitis (UC) and to detail the factors that influence this.
designQualitative research study using in-depth semi-structured interviews.
settingFour clinical sites in the West and East Midlands regions of England.
participants28 adult patients diagnosed with UC for years between 1 and 22.
resultsMedication was rarely sufficient for patients to adapt to UC and live as 'normal' a life as possible. Virtually all patients tested and adopted non-medical adaptation methods to improve physical and psychological well-being, to help them carry on working and to prevent embarrassment. In addition, some patients benefited from outside support providing them with practical, emotional and/or financial help. In conjunction with adaptation strategies and the time to adapt, this meant that some patients with severe clinical disease were able to maintain a sense of normality in life. Patients reported that clinicians were not always receptive to discussion of the broader context of life with UC.
conclusionsPatients' experience of UC and their ability to adapt in order to maintain a sense of normality in life is a complex interplay of symptoms, adaptation strategies and outside support. Over time patients test out a variety of non-medical adaptation strategies. Awareness of this may help clinicians and researchers to understand patients' views on the role of medical and other therapies. Further research around the utility of this framework in clinical practice and research is now required. TRIAL REGISTRATION NUMBER: ISRCTN56523019, results.
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