Evidence map›Paper›PMID 28825055›Full record

ArticleJournal of psoriasis and psoriatic arthritis2017

National Psoriasis Foundation Priorities for Patient-Centered Research: Proceedings from the 2016 Conference.

Ladan Afifi, Lindsey Shankle, April W Armstrong, Marc Boas, Alisha Bridges, Vivian Chiguil, Frank Doris, Kristina Callis Duffin, Eric Fielding, Roy Fleischmann and 12 more

Abstract read
In one paragraph

Article in Journal of psoriasis and psoriatic arthritis, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed.

  1. Cardiovascular Disease and Psoriasis.Dermatology and therapy · 2026
    Review
  2. Understanding Patient Priorities for Psoriatic Disease Research.Journal of psoriasis and psoriatic arthritis · 2025
    Article
  3. Observational
  4. Article
  5. Review
  6. Engaging the Patient's Perspective in Clinical Trials Research.The Journal of investigative dermatology · 2019
    Article
  7. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

22 authors.

Ladan AfifiUniversity of California, San Francisco, San Francisco, California.
Lindsey ShankleNational Psoriasis Foundation, Portland, Oregon.
April W ArmstrongUniversity of Southern California, Los Angeles, California.
Marc BoasCitizen Pscientist Governance Council, Portland, Oregon.
Alisha BridgesCitizen Pscientist Governance Council, Portland, Oregon.
Vivian ChiguilUniversity of California, San Francisco, San Francisco, California.
Frank DorisCitizen Pscientist Governance Council, Portland, Oregon.
Kristina Callis DuffinUniversity of Utah, Salt Lake City, Utah.
Eric FieldingUniversity of California, San Francisco, San Francisco, California.
Roy FleischmannUniversity of California, San Francisco, San Francisco, California.
Joel M GelfandUniversity of Pennsylvania, Philadelphia, Pennsylvania.
Matthew KiselicaUniversity of California, San Francisco, San Francisco, California.
Catherine KiselicaUniversity of California, San Francisco, San Francisco, California.
Brian LaFoyUniversity of California, San Francisco, San Francisco, California.
John J LatellaUniversity of California, San Francisco, San Francisco, California.
Junko TakeshitaUniversity of Pennsylvania, Philadelphia, Pennsylvania.
Sarah TrumanCitizen Pscientist Governance Council, Portland, Oregon.
Marilyn T WanUniversity of Pennsylvania, Philadelphia, Pennsylvania.
Vickie WilkersonUniversity of California, San Francisco, San Francisco, California.
Jashin J WuKaiser Permanente Los Angeles Medical Center, Los Angeles, California.
Michael P SiegelNational Psoriasis Foundation, Portland, Oregon.
Wilson LiaoUniversity of California, San Francisco, San Francisco, California.

Funding

MHC and KIR Region Genomics in PsoriasisU01AI119125 · NIAID · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI LIAO, WILSON · 2015 to 2019
$3.5M
Identification of Causal Variants in PsoriasisR01AR065174 · NIAMS · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI LIAO, WILSON · 2013 to 2016
$1.8M
NIAID NIH HHS U01 AI119125NIAMS NIH HHS R01 AR065174
6 · The paper itself

Abstract

The National Psoriasis Foundation (NPF) is developing an agenda for patient-centered research to help patients and their caregivers make more informed health care decisions by engaging psoriasis patients in prioritizing comparative effectiveness research (CER) topics. The NPF has created a novel patient-centered research platform known as Citizen Pscientist (CP), allowing patients with psoriasis and psoriatic arthritis to register and contribute their health data. The CP Governance Council administered an online 23-question CER survey to the CP community and held a structured meeting on December 3, 2016, with patients and researchers to review CER survey results and discuss patient-centered research priorities. Of the 2,945 patients surveyed, 792 patients responded. Three CER topics were deemed to be of high priority for the research agenda: 1) Treat-to-target therapy for psoriasis, 2) Psoriatic arthritis screening questionnaires for early detection and treatment of psoriatic arthritis, and 3) Comparative effectiveness of home-based phototherapy for psoriasis.

Indexed as

Citizen Pscientistcomparative effectiveness researchhome phototherapypatient-centered researchpsoriasispsoriatic arthritisscreening questionnairetreat-to-target

Identifiers

PMID28825055
PMCPMC5562437

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.