Evidence map›Paper›PMID 28823389›Full record

ArticleDisability and health journal2018

Introducing the Adults with Chronic Healthcare Needs (ACHCN) definition and screening instrument: Rationale, supporting evidence and testing.

Stephen P Gulley, Elizabeth K Rasch, Barbara M Altman, Christina D Bethell, Adam C Carle, Benjamin G Druss, Amy J Houtrow, Amanda Reichard, Leighton Chan

Abstract read
In one paragraph

Article in Disability and health journal, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Stephen P GulleyThe Heller School for Social Policy and Management, Brandeis University, Waltham, MA, United States; National Institutes of Health, Clinical Research Center, Rehabilitation Medicine Department, Bethesda, MD, United States. Electronic address: gulley@brandeis.edu.
Elizabeth K RaschNational Institutes of Health, Clinical Research Center, Rehabilitation Medicine Department, Bethesda, MD, United States.
Barbara M AltmanDisability Statistics Consultant, Rockville, MD, United States.
Christina D BethellJohn Hopkins Bloomberg School of Public Health, Baltimore, MD, United States.
Adam C CarleCincinnati Children's Hospital Medical Center, Cincinnati, OH, United States.
Benjamin G DrussRollins School of Public Health, Emory University, GA, United States.
Amy J HoutrowUniversity of Pittsburgh School of Medicine, Pittsburgh, PA, United States.
Amanda ReichardUniversity of Kansas, Lawrence, KS, United States.
Leighton ChanNational Institutes of Health, Clinical Research Center, Rehabilitation Medicine Department, Bethesda, MD, United States.

Funding

Analyzing the SSA Disability Evaluation ProcessZIACL060065 · CLC · CLINICAL CENTER · PI CHAN, LEIGHTON · 2009 to 2025
$0k
Adults with Chronic Health Care NeedsZIACL060067 · CLC · CLINICAL CENTER · PI CHAN, LEIGHTON · 2009 to 2020
$0k
Intramural NIH HHS ZIA CL060067
6 · The paper itself

Abstract

backgroundAmong working age adults in the United States, there is a large, heterogeneous population that requires ongoing and elevated levels of healthcare and related services. At present, there are conflicting approaches to the definition and measurement of this population in health services research.

objectiveAn expert panel was convened by the National Institutes of Health with the objective of developing a population-level definition of Adults with Chronic Healthcare Needs (ACHCN). In addition, the panel developed a screening instrument and methods for its use in health surveys to identify and stratify the population consistently.

methodsThe panel employed multiple methods over the course of the project, including scoping literature reviews, quantitative analyses from national data sources and cognitive testing.

resultsThe panel defined the ACHCN population as "Adults (age 18-65) with [1] ongoing physical, cognitive, or mental health conditions or difficulties functioning who [2] need health or related support services of a type or amount beyond that needed by adults of the same sex and similar age." The screener collects information on chronic health conditions, functional difficulties, and elevated use of or unmet need for healthcare services.

conclusionsAdapted from the Maternal and Child Health Bureau definition that identifies Children with Special Healthcare Needs, aligned with the ACS-6 disability measure, and consistent with the HHS Multiple Chronic Condition Framework, this definition and screener provide the research community with a common denominator for the identification of ACHCN.

Indexed as

Chronic DiseaseDelivery of Health CareDiagnostic Techniques and ProceduresHealth ServicesHealth SurveysPersons with DisabilitiesAdolescentAdultAgedFemaleHealth Services ResearchHumansMaleMiddle AgedSurveys and QuestionnairesUnited StatesChronic conditionsHealth service utilizationHealth surveysMeasurementPeople with disabilities

Identifiers

PMID28823389
PMCPMC5803472

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.