Evidence map›Paper›PMID 28817324›Full record

ArticleAmerican journal of public health2017

Legal, Practical, and Ethical Considerations for Making Online Patient Portals Accessible for All.

Courtney R Lyles, Jim Fruchterman, Mara Youdelman, Dean Schillinger

Abstract read
In one paragraph

Article in American journal of public health, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 33 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
33citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

33 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
  2. Pooled it
  3. Trial
  4. Patient Portal Use Among Older Adults: What Is Really Happening Nationwide?Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2020
    Trial
  5. Trial
  6. Trial
  7. Article
  8. Article
  9. Review
  10. Review
  11. Centering Health Equity in an Increasingly Digital Environment.Perspectives in biology and medicine · 2025
    Article
  12. Article
  13. Article
  14. Article
  15. Review
  16. Digital healthcare equity in primary care: implementing an integrated digital health navigator.Journal of the American Medical Informatics Association : JAMIA · 2023
    Article
  17. Review
  18. Telehealth experiences of providers and patients who use augmentative and alternative communication.Journal of the American Medical Informatics Association : JAMIA · 2022
    Article
  19. Article
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Courtney R LylesCourtney R. Lyles and Dean Schillinger are with the Center for Vulnerable Populations and the Division of General Internal Medicine, Zuckerberg San Francisco General Hospital, University of California, San Francisco. Jim Fruchterman is with Benetech, Palo Alto, CA. Mara Youdelman is with the National Health Law Program, Washington, DC.
Jim FruchtermanCourtney R. Lyles and Dean Schillinger are with the Center for Vulnerable Populations and the Division of General Internal Medicine, Zuckerberg San Francisco General Hospital, University of California, San Francisco. Jim Fruchterman is with Benetech, Palo Alto, CA. Mara Youdelman is with the National Health Law Program, Washington, DC.
Mara YoudelmanCourtney R. Lyles and Dean Schillinger are with the Center for Vulnerable Populations and the Division of General Internal Medicine, Zuckerberg San Francisco General Hospital, University of California, San Francisco. Jim Fruchterman is with Benetech, Palo Alto, CA. Mara Youdelman is with the National Health Law Program, Washington, DC.
Dean SchillingerCourtney R. Lyles and Dean Schillinger are with the Center for Vulnerable Populations and the Division of General Internal Medicine, Zuckerberg San Francisco General Hospital, University of California, San Francisco. Jim Fruchterman is with Benetech, Palo Alto, CA. Mara Youdelman is with the National Health Law Program, Washington, DC.

Funding

Translational Research Core - Health Engagement & Action Translational (HEAT)P30DK092924 · NIDDK · KAISER FOUNDATION RESEARCH INSTITUTE · PI Alyce Sophia Adams, HILARY Kessler SELIGMAN · 2011 to 2026
$9.2M
The Next Frontier in Diabetes Communication: Promoting Health Literacy in the Era of Secure MessagingR01LM012355 · NLM · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI KARTER, ANDREW JOHN, SCHILLINGER, DEAN · 2015 to 2018
$2.8M
Engaging Diverse Patients in Using an Online Patient PortalR00HS022408 · AHRQ · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI LYLES, COURTNEY REES · 2015 to 2017
$740k
Overcoming Health Disparities by Engaging Patients with the Personal Health Record, MYSFHEALTHG08LM012166 · NLM · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI KIYOI, STEPHEN, LYLES, COURTNEY REES · 2015 to 2017
$291k
AHRQ HHS R00 HS022408NIDDK NIH HHS P30 DK092924NLM NIH HHS G08 LM012166NLM NIH HHS R01 LM012355
6 · The paper itself

Abstract

Largely driven by the financial incentives of the HITECH Act's Meaningful Use program as part of federal US health care reform, access to portal Web sites has rapidly expanded, allowing many patients to view their medical record information online. Despite this expansion, there is little attention paid to the accessibility of portals for more vulnerable patient populations-especially patients with limited health literacy or limited English proficiency, and individuals with disabilities. We argue that there are potential legal mandates for improving portal accessibility (e.g., the Civil Rights and the Rehabilitation Acts), as well as ethical considerations to prevent the exacerbation of existing health and health care disparities. To address these legal, practical, and ethical considerations, we present standards and broad recommendations that could greatly improve the reach and impact of portal Web sites.

Indexed as

Computer User TrainingHealthcare DisparitiesHealth LiteracyHumansInternetPatient Access to RecordsPatient PortalsPersons with DisabilitiesUser-Computer InterfaceVulnerable Populations

Identifiers

PMID28817324
PMCPMC5607665

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.