ArticleBrain injury2017
Targeted areas for improving health literacy after traumatic brain injury.
Article in Brain injury, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
7 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Action Collaborative on Traumatic Brain Injury Care: Adapted Clinical Practice Guideline.Annals of family medicine · 2025Guideline
- Participatory Development of an International Information Brochure on the Multimodal Assessment of Disorders of Consciousness.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Provider Perspectives on Early Psychosocial Interventions after Pediatric Severe Traumatic Brain Injury: An Implementation Framework.Journal of neurotrauma · 2021Article
- Traumatic Brain Injury and Sexuality: User Experience Study of an Information Toolkit.Journal of participatory medicine · 2020Article
- Race/Ethnicity and Informal Caregiver Burden After Traumatic Brain Injury: A Scoping Study.Health equity · 2020Article
- Health disparities in orthopedic trauma: a qualitative study examining providers' perspectives on barriers to care and recovery outcomes.Social work in health careArticle
- The Experience of Caregivers Following a Moderate to Severe Traumatic Brain Injury Requiring ICU Admission.The Journal of head trauma rehabilitationArticle
Corrections and comments
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Authors and funding
4 authors.
Funding
Abstract
objectiveTo develop a framework to identify targeted areas for improving health literacy for caregivers after traumatic brain injury (TBI).
methodQualitative study using inductive and deductive qualitative content analysis was conducted in a large, urban, level I trauma centre. Interviews were conducted with 23 caregivers of persons with TBI. Participants' perspectives on communication and preparation for discharge were explored and understanding of commonly used words and discharge instructions were assessed.
resultsFour types of communication patterns were identified: formal, informal, indirect and caregiver-initiated. Informal and caregiver-initiated communication were the most common. All caregivers reported confusion about their family member's condition, care plan or discharge plan. Caregivers were not able to define commonly used terms in discharge instructions, and were confused by formatting and medical language. Caregivers were not aware of expected caregiving roles upon discharge. Conceptualizing findings within a family-centred care model, we offer specific strategies to improve health communication and caregiver capacity building to enhance health literacy.
conclusionsHealth literacy and caregiver capacity to care for loved ones with TBI after hospital discharge is low. We offer specific target areas for improvement in verbal and written communication and capacity building that take into account provider, patient and family characteristics.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.