ArticleJournal of the American Geriatrics Society2017
Societal and Family Lifetime Cost of Dementia: Implications for Policy.
Article in Journal of the American Geriatrics Society, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 2 registered trials, which are not on this map. Cited by 89 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
The Mindful and Self-Compassionate Care Program Aim 2
Supporting Our Caregivers In ADRD Learning (SOCIAL): Reducing Stress for Caregivers of Persons With Dementia, a Pilot Randomized Control Trial
Who cites it
89 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Socially Assistive Robots for People Living with Dementia in Long-Term Facilities: A Systematic Review and Meta-Analysis of Randomized Controlled Trials.Gerontology · 2023Pooled it
- Long-term effects of collaborative dementia care on quality of life and caregiver well-being.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Trial
- Long-term cognitive training enhances fluid cognition and brain connectivity in individuals with MCI.Translational psychiatry · 2024Trial
- Economic Analysis of the Tailored Activity Program: A Nonpharmacological Approach to Improve Quality of Life in People Living With Dementia and their Caregivers.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2023Trial
- A methodology for an acute exercise clinical trial called dementia risk and dynamic response to exercise.Scientific reports · 2021Trial
- A longitudinal evaluation of family caregivers' willingness to pay for an in-home nonpharmacologic intervention for people living with dementia: results from a randomized trial.International psychogeriatrics · 2021Trial
- Enhancing Cognitive Functions of Older Adults With Software Robot: Longitudinal Exploratory Field Study.JMIR mHealth and uHealth · 2026Article
- Amyloid-β PET scans, economic strain and financial decision-making among persons with cognitive impairment and care partners: a mixed-methods analysis of the CARE-IDEAS study.Alzheimer's research & therapy · 2026Article
- Developing and Testing a Program to Strengthen the Dementia Palliative Care Trial Workforce.Journal of pain and symptom management · 2026Article
- What needs to be addressed in caring for people living with dementia? A multi-faceted evidence on financial, psychological, and physical health issues in dementia care.Frontiers in dementia · 2026Article
- The cost of non-drug interventions that improve function and reduce dementia-related behaviors.BMC geriatrics · 2025Article
- Downstream of hearing loss: a population-based multistate analysis of lifetime risk and years lived with hearing loss, dementia and their comorbidity in Finland.Age and ageing · 2025Article
- Societal Costs and Efficiency of Subcutaneous versus Intravenous Lecanemab in Early Alzheimer's Disease: A U.S. Cost Comparison Model.Neurology and therapy · 2025Article
- Decomposing Medicare total, Part D, and Part B drug payments among people with Alzheimer's disease and related diseases.Health affairs scholar · 2025Article
- Characterizing financial risk from out-of-pocket expenditures across dementia stages.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Article
- Associations between blood-based neurodegenerative biomarkers and cognitive functioning and decline in India.Journal of Alzheimer's disease : JAD · 2025Article
- Dissemination of the Care Ecosystem Collaborative Care Model for Dementia.Journal of the American Geriatrics Society · 2025Article
- Top-Rated Health Care and Ease of Access to Medications Linked to Lower Medicare and ADRD Costs.Medical care · 2025Article
- Breaking the silence: understanding the unique burden on informal Black male dementia caregivers.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Article
- Risk of Antipsychotic Initiation Among Older Dementia Patients Initiating Cholinesterase Inhibitors.Drug, healthcare and patient safety · 2025Article
29 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
Abstract
objectivesTo estimate the cost of dementia and the extra cost of caring for someone with dementia over the cost of caring for someone without dementia.
designWe developed an evidence-based mathematical model to simulate disease progression for newly diagnosed individuals with dementia. Data-driven trajectories of cognition, function, and behavioral and psychological symptoms were used to model disease progression and predict costs. Using modeling, we evaluated lifetime and annual costs of individuals with dementia, compared costs of those with and without clinical features of dementia, and evaluated the effect of reducing functional decline or behavioral and psychological symptoms by 10% for 12 months (implemented when Mini-Mental State Examination score ≤21).
settingMathematical model.
participantsRepresentative simulated U.S. incident dementia cases. MEASUREMENTS: Value of informal care, out-of-pocket expenditures, Medicaid expenditures, and Medicare expenditures.
resultsFrom time of diagnosis (mean age 83), discounted total lifetime cost of care for a person with dementia was $321,780 (2015 dollars). Families incurred 70% of the total cost burden ($225,140), Medicaid accounted for 14% ($44,090), and Medicare accounted for 16% ($52,540). Costs for a person with dementia over a lifetime were $184,500 greater (86% incurred by families) than for someone without dementia. Total annual cost peaked at $89,000, and net cost peaked at $72,400. Reducing functional decline or behavioral and psychological symptoms by 10% resulted in $3,880 and $680 lower lifetime costs than natural disease progression.
conclusionDementia substantially increases lifetime costs of care. Long-lasting, effective interventions are needed to support families because they incur the most dementia cost.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.