Evidence map›Paper›PMID 28813183›Full record

ReviewJournal of dental research2017

Quality-of-Life in Children with Orofacial Clefts and Caregiver Well-being.

L Sischo, M Wilson-Genderson, H L Broder

Abstract readReview
In one paragraph

Review in Journal of dental research, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers.

0numbers the graph read from it
0cells of the map it votes in
22citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

22 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Article
  5. Article
  6. Article
  7. Article
  8. Article
  9. Article
  10. Article
  11. Isolation, Uncertainty and Treatment Delays: Parents' Experiences of Having a Baby with Cleft Lip/Palate During the Covid-19 Pandemic.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2023
    Article
  12. Review
  13. Follow-Up Care Barriers for Patients with Orofacial Clefts.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2022
    Article
  14. Article
  15. Article
  16. Article
  17. Article
  18. Review
  19. Appearance and Speech Satisfaction and Their Associations With Psychosocial Difficulties Among Young People With Cleft Lip and/or Palate.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2020
    Article
  20. Family Experience With Pierre Robin Sequence: A Qualitative Study.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2020
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

L Sischo1 NYU College of Dentistry, New York, NY, USA.
M Wilson-Genderson2 Temple University College of Public Health, Philadelphia, PA, USA.
H L Broder1 NYU College of Dentistry, New York, NY, USA.

Funding

Quality of Life in Children with CleftR01DE018729 · NIDCR · NEW YORK UNIVERSITY · PI BRODER, HILLARY L · 2009 to 2013
$3.2M
Caregiver Responses to Nasoalveolar Molding and Early Cleft CareR21DE021853 · NIDCR · NEW YORK UNIVERSITY · PI BRODER, HILLARY L · 2012 to 2014
$523k
NIDCR NIH HHS R01 DE018729NIDCR NIH HHS R21 DE021853
6 · The paper itself

Abstract

Quality of life is a valid patient-reported parameter that provides an assessment of treatment need or outcomes complementary to standard clinical measures. Such patient-reported assessments are particularly salient when examining chronic conditions with prolonged treatment trajectories, such as cleft lip and palate. This critical review identifies key questions related to ongoing research on the oral health-related quality of life (OHRQoL) in children with cleft and caregiver well-being. Details of the design and results from 2 longitudinal multicenter studies are presented. This article also provides an update on recent published reports regarding OHRQoL in individuals with cleft. Methodological issues in OHRQoL research are discussed, including condition-specific versus generic instruments, incorporating positive items in OHRQoL instruments, calculating minimally important differences in OHRQoL, implementing mixed methods design, and utilizing validated short assessment forms in OHRQoL research. Finally, new directions for research in cleft as a chronic condition are identified and discussed.

Indexed as

Quality of LifeCaregiversChildCleft LipCleft PalateHumanscleft lipcleft palatefamily relationslongitudinal studiespatient-reported outcomesresilience

Identifiers

PMID28813183
PMCPMC5700797

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.