SynthesisHealth expectations : an international journal of public participation in health care and health policy2018
Black and minority ethnic group involvement in health and social care research: A systematic review.
Synthesis in Health expectations : an international journal of public participation in health care and health policy, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 77 papers, 9 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
77 citing papers in PubMed, 9 syntheses or guidelines pooled it.
- Recommendations to promote equity, diversity and inclusion in decentralized clinical trials.Nature medicine · 2024Guideline
- Evaluation of research co-design in health: a systematic overview of reviews and development of a framework.Implementation science : IS · 2024Pooled it
- Identifying evidence of effectiveness in the co-creation of research: a systematic review and meta-analysis of the international healthcare literature.Journal of public health (Oxford, England) · 2021Pooled it
- Exploring the theory, barriers and enablers for patient and public involvement across health, social care and patient safety: a systematic review of reviews.Health research policy and systems · 2021Pooled it
- A Systematic Review of Fear of Cancer Recurrence Among Indigenous and Minority Peoples.Frontiers in psychology · 2021Pooled it
- A systematic review to identify research priority setting in Black and minority ethnic health and evaluate their processes.PloS one · 2021Pooled it
- The safety of health care for ethnic minority patients: a systematic review.International journal for equity in health · 2020Pooled it
- Current trends in patient and public involvement in cancer research: A systematic review.Health expectations : an international journal of public participation in health care and health policy · 2019Pooled it
- Black and minority ethnic group involvement in health and social care research: A systematic review.Health expectations : an international journal of public participation in health care and health policy · 2018Pooled it
- Lessons learned from including Patient and Public Involvement members throughout research projects in Tic Disorder research.Research involvement and engagement · 2026Article
- Global Insights on the Involvement of Ethnic Minority Populations in Health and Social Care Research Priority Setting: A Systematic Scoping Review.Journal of racial and ethnic health disparities · 2026Article
- From tokenism to transformation: lessons from the TOGETHER study for building inclusive and equitable research.Research involvement and engagement · 2026Article
- Public perceptions of health data sharing for artificial intelligence research: a qualitative focus group study in the UK.BMJ digital health & AI · 2026Article
- 5 Years of bipolar disorder conversations on Reddit: Methods, key topics and future directions.PloS one · 2026Article
- What approaches are used to facilitate people from under-served communities getting involved with health research? A public contributor led review.Research involvement and engagement · 2025Review
- Involving Experts by Experience in Craniofacial Research.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2025Article
- What are the most important research questions within prediabetes? A priority setting partnership in collaboration with patients, healthcare professionals and researchers.Diabetologia · 2025Article
- Co-Designing an Engagement Strategy to Include the Voices of a Minority Group in Assessing the Quality of Maternity and Neonatal Care.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Coproducing COVID-19 Health Information Resources: A Participatory Study With Older Adults From Minoritised Ethnic Communities in the UK.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Distinguishing participants, patients and the public: implications of different institutional settings on engagement approaches.Research involvement and engagement · 2025Article
17 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPatient and public involvement (PPI) in research is growing internationally, but little is known about black and minority ethnic (BME) involvement and the factors influencing their involvement in health and social care research.
objectivesTo characterize and critique the empirical literature on BME-PPI involvement in health and social care research. SEARCH STRATEGY: Systematic searches of six electronic bibliographic databases were undertaken, utilizing both MeSH and free-text terms to identify international empirical literature published between 1990 and 2016. INCLUSION CRITERIA: All study designs that report primary data that involved BME groups in health or social care research. Screening was conducted by two reviewers. DATA EXTRACTION AND SYNTHESIS: Data extraction and quality appraisal were performed independently. Data extraction focused on the level(s) of PPI involvement and where PPI activity occurred in the research cycle. Studies were quality-assessed using the guidelines for measuring the quality and impact of user involvement in research. Data were analysed using a narrative approach. MAIN
resultsForty-five studies were included with the majority undertaken in the USA focusing on African Americans and indigenous populations. Involvement most commonly occurred during the research design phase and least in data analysis and interpretation.
conclusionThis is the first systematic review investigating BME involvement in health and social care research internationally. While there is a widespread support for BME involvement, this is limited to particular phases of the research and particular ethnic subgroups. There is a need to understand factors that influence BME involvement in all parts of the research cycle.
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Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.