ArticleMedical decision making : an international journal of the Society for Medical Decision Making2018
Whose Preferences Matter? A Patient-Centered Approach for Eliciting Treatment Goals.
Article in Medical decision making : an international journal of the Society for Medical Decision Making, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 3 registered trials, which are not on this map. Cited by 24 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Incorporating Patient Preferences Into Decisions About Chronic Pain Management (The Pain APP Study)
Validation of a Shared Decision-Making Tool, MS-SUPPORT, to Improve Decisions About Disease Modifying Therapies (DMT) for Multiple Sclerosis
Understanding Patient Goals and Preferences to Facilitate Shared Decision Making for Symptomatic Aortic Stenosis
Who cites it
24 citing papers in PubMed.
- Training physicians in providing complex information to patients with multiple sclerosis: a randomised controlled trial.BMJ open · 2022Trial
- Impact of Pre-visit Contextual Data Collection on Patient-Physician Communication and Patient Activation: a Randomized Trial.Journal of general internal medicine · 2021Trial
- Healthcare providers' perceptions of mental and sexual health needs of young males with forced migration experiences in Stockholm Region, Sweden.BMC health services research · 2026Article
- Arabic translation and psychometric validation of the Problem-Solving Decision-Making scale: A cross-sectional study in Saudi Arabia.PloS one · 2026Article
- Expanding the use and interpretation of patient-centric cardiovascular clinical trial endpoints.Journal of clinical and translational science · 2025Review
- Using value-focused thinking to elicit oncologic inpatients' life and treatment objectives: a qualitative interview study.The Journal of international medical research · 2024Article
- Comparison of SIREN social needs screening tools and Simplified Omaha System Terms: informing an informatics approach to social determinants of health assessments.Journal of the American Medical Informatics Association : JAMIA · 2023Article
- Prediction of patient choice tendency in medical decision-making based on machine learning algorithm.Frontiers in public health · 2023Article
- The prototype of a preference-based index of weight-related quality of life: demonstrating the possibilities.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2022Article
- Factors Associated with Weight Loss Maintenance and Weight Regain Among African American and White Adults Initially Successful at Weight Loss.Journal of racial and ethnic health disparities · 2022Article
- Patient-based benefit-risk assessment of medicines: development, refinement, and validation of a content search strategy to retrieve relevant studies.Journal of the Medical Library Association : JMLA · 2022Article
- Clinical Evaluation of Siponimod for the Treatment of Secondary Progressive Multiple Sclerosis: Pathophysiology, Efficacy, Safety, Patient Acceptability and Adherence.Patient preference and adherence · 2022Review
- Shared decision-making in patients with multiple sclerosis.Frontiers in neurology · 2022Article
- What matters most to patients with severe aortic stenosis when choosing treatment? Framing the conversation for shared decision making.PloS one · 2022Article
- An ID-Associated Application to Facilitate Patient-Tailored Management of Multiple Sclerosis.Brain sciences · 2021Article
- DBS-Edmonton App, a Tool to Manage Patient Expectations of DBS in Parkinson Disease.Neurology. Clinical practice · 2021Article
- Disease Progression in Multiple Sclerosis: A Literature Review Exploring Patient Perspectives.Patient preference and adherence · 2021Review
- A Study Comparing Patient and Clinician Perspectives of Treatments for Multiple Sclerosis via Group Concept Mapping.Patient preference and adherence · 2021Article
- Improving patient-provider communication about chronic pain: development and feasibility testing of a shared decision-making tool.BMC medical informatics and decision making · 2020Article
- Priorities for Patient-Centered Research in Valvular Heart Disease: A Report From the National Heart, Lung, and Blood Institute Working Group.Journal of the American Heart Association · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
14 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPatients facing a high-stakes clinical decision are often confronted with an overwhelming array of options. High-quality decisions about treatment should reflect patients' preferences as well as their clinical characteristics. Preference-assessment instruments typically focus on pre-selected clinical outcomes and attributes chosen by the investigator.
objectiveWe sought to develop a patient-centered approach to elicit and compare the treatment goals of patients with multiple sclerosis (MS) and healthcare providers (HCPs).
methodsWe conducted five nominal group technique (NGT) meetings to elicit and prioritize treatment goals from patients and HCPs. Five to nine participants in each group responded silently to one question about their treatment goals. Responses were shared, consolidated, and ranked to develop a prioritized list for each group. The ranked lists were combined. Goals were rated and sorted into categories. Multidimensional scaling and hierarchical cluster analysis were used to derive a visual representation, or cognitive map, of the data and to identify conceptual clusters, reflecting how frequently items were sorted into the same category.
resultsFive NGT groups yielded 34 unique patient-generated treatment goals and 31 unique HCP-generated goals. There were differences between patients and HCPs in the goals generated and how they were clustered. Patients' goals tended to focus on the impact of specific symptoms on their day-to-day lives, whereas providers' goals focused on slowing down the course of disease progression.
conclusionsDifferences between the treatment goals of patients and HCPs underscore the limitations of using HCP- or investigator-identified goals. This new adaptation of cognitive mapping is a patient-centered approach that can be used to generate and organize the outcomes and attributes for values clarification exercises while minimizing investigator bias and maximizing relevance to patients.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.