ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2017
Impact of monitoring health-related quality of life in clinical practice in children with type 1 diabetes mellitus.
Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
16 citing papers in PubMed, 2 syntheses or guidelines pooled it, 35 citations in OpenAlex.
- Routine provision of feedback from patient-reported outcome measurements to healthcare providers and patients in clinical practice.The Cochrane database of systematic reviews · 2021Pooled it
- Patient-Reported Outcome Measures in Routine Pediatric Clinical Care: A Systematic Review.Frontiers in pediatrics · 2020Pooled it
- Use of Parent- and Patient-Reported Outcome Measures in Pediatric Specialty Clinics: A Pilot Randomized Clinical Trial.JAMA network open · 2026Trial
- A scoping review of the electronic collection and capture of patient reported outcome measures for children and young people in the hospital setting.PLOS digital health · 2025Article
- Truth and dare: patients dare to tell the truth when using PROMs in clinical practice.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024Article
- The impact of childhood glaucoma on psychosocial functioning and quality of life: a review of the literature.Eye (London, England) · 2023Review
- Remote Symptom Monitoring With Ecological Momentary Computerized Adaptive Testing: Pilot Cohort Study of a Platform for Frequent, Low-Burden, and Personalized Patient-Reported Outcome Measures.Journal of medical Internet research · 2023Article
- The Development, Deployment, and Evaluation of the CLEFT-Q Computerized Adaptive Test: A Multimethods Approach Contributing to Personalized, Person-Centered Health Assessments in Plastic Surgery.Journal of medical Internet research · 2023Article
- Involving children and adolescents with type 1 diabetes in health care: a qualitative study of the use of patient-reported outcomes.Journal of patient-reported outcomes · 2023Article
- The KIDSCREEN-27 Quality of Life Measure for Romanian Children Aged 6: Reliability and Validity of the Romanian Version.Healthcare (Basel, Switzerland) · 2022Article
- Health-related quality of life in 4-to-6-year-old children with type 1 diabetes mellitus estimated by children and their mothers.European journal of pediatrics · 2022Article
- All together: Integrated care for youth with type 1 diabetes.Pediatric diabetes · 2021Article
- Quality of Life in Romanian Children with Type 1 Diabetes: A Cross-Sectional Survey Using an Interdisciplinary Healthcare Intervention.Healthcare (Basel, Switzerland) · 2020Article
- Measurement of health-related quality of life in patients with diabetes mellitus using EQ-5D-5L in Hong Kong, China.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2020Article
- Measurement Properties of the Online EuroQol-5D-Youth Instrument in Children and Adolescents With Type 1 Diabetes Mellitus: Questionnaire Study.Journal of medical Internet research · 2019Article
- Characteristics of Future Models of Integrated Outpatient Care.Healthcare (Basel, Switzerland) · 2019Review
Corrections and comments
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Authors and funding
11 authors at 7 institutions in 3 countries.
Funding
Abstract
purposeTo test whether the systematic monitoring of health-related quality of life (HRQOL) in clinical practice in Spanish pediatric patients with T1DM helps improve their daily life in a multicenter longitudinal study.
methodsOne hundred thirty-six patients participated, recruited from five centers in Barcelona, Spain (72 girls, mean age 13.4 years). Complete data were collected for 119 patients (85%). Pediatricians were randomly assigned to the HRQOL intervention (n = 70), or control group (n = 49). The intervention group discussed the results of HRQOL face to face with the physician, quarterly over a year. The control group received care as usual. HRQOL was assessed using KIDSCREEN-27 collected online. Standardized mean differences (effect size, ES) and generalized estimating equation (GEE) were computed to compare group differences between baseline and follow-up, taking into account sociodemographic and clinical variables.
resultsStatistically significant higher scores were seen in the intervention group at follow-up for the dimensions of Psychological well-being (ES = 0.56), School environment (ES = 0.56), and the KIDSCREEN-10 index (ES = 0.63). No differences were found in the control group. GEE analysis showed an improvement in HRQOL at follow-up with statistically significant association of the intervention on Psychological well-being (B = 4.32; p 0.03 for the interaction of group by follow-up) and School environment (B = 4.64; p 0.02 for the same interaction term).
conclusionsRoutine assessment and face-to-face patient-physician discussion of HRQOL results improved HRQOL scores after a year of follow-up, especially in Psychological well-being and school environment. The results support the routinary use of HRQOL assessment in clinical practice.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.