ArticlePediatric blood & cancer2018
Longitudinal parental preferences for late effects communication during cancer treatment.
Article in Pediatric blood & cancer, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
12 citing papers in PubMed.
- Article
- "We Were Still Left in the Back Field, Not Knowing": Pediatric Cancer Patients and Parents Describe Obstacles to Prognostic Communication.Cancer medicine · 2025Article
- "A very difficult conversation": Challenges and opportunities for improvement in pediatric oncology clinician communication about late effects.Pediatric blood & cancer · 2024Article
- Prognosis Communication in Pediatric Oncology: A Systematic Review.Children (Basel, Switzerland) · 2023Review
- Thinking ahead: Parents' worries about late effects of childhood cancer treatment.Pediatric blood & cancer · 2021Article
- Clinicians' Perspectives on the Functions of Communication in Pediatric Oncology.Journal of palliative medicine · 2021Article
- "Don't be afraid to speak up": Communication advice from parents and clinicians of children with cancer.Pediatric blood & cancer · 2021Article
- Assume It Will Break: Parental Perspectives on Negative Communication Experiences in Pediatric Oncology.JCO oncology practice · 2021Article
- The evolution of regret: decision-making for parents of children with cancer.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2020Article
- Persistently low peace of mind in parents of cancer patients: A five-year follow-up study.Pediatric blood & cancer · 2019Article
- Parental distress and desire for information regarding long-term implications of pediatric cancer treatment.Cancer · 2018Article
- Parent understanding of the risk of future limitations secondary to pediatric cancer treatment.Pediatric blood & cancer · 2018Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
Abstract
Few studies have investigated parent preferences for late effects communication during pediatric cancer treatment. We used questionnaire data to assess whether parental preferences for late effects information change over the year after diagnosis. Most parents found this information to be very/extremely important at baseline, assessed soon after diagnosis, (94%, 153/162), 4 months (91%, 147/162), and 12 months (96%, 156/163). Similarly, most parents wanted as much detail as possible about late effects at baseline (85%, 141/165), 4 months (87%, 144/165), and 12 months (83%, 137/165). Parents of children with favorable prognoses preferred more details at baseline (OR 2.94, 1.18-7.31, P = 0.02) than parents whose children had less favorable prognoses.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.